| | Joined: Apr 2016 Posts: 75 Likes: 2 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Apr 2016 Posts: 75 Likes: 2 | Hello I have a question I was wondering if anyone ever heard of this cancer moving to the brain without any other tumors present. I am awaiting test results from a biopsy on my tongue and this would be my third time. But lately I can't bend over without pain in my head and was wondering if I should be worrying, thank, Michele
SCC 2005 floor of mouth and neck disection
SCC 2009 partial rt tongue RAD
PEG 2009
20 HBO treatments following surgery of three teeth and 10 more HBO to follow
2015 Diced food diet due to weak muscles long term effects of radiation
2018 Radiation Fibrosis of the jaw and neck, vocal cord dysfunction
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Michele, I don't think anything good comes from worrying. Squamous cell carcinoma can go anywhere blood or lymphatic fluid goes.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | Michele, I am sending you good luck vibes. Waiting is one of the hardest parts and our minds can conjure up many negative scenarios. It's easier said than done but try to do things you enjoy while you are waiting. Food, movies, books, shopping .... Whatever will give you a lift. I've had oral cancer three times and each time it has stayed local. I know everyone's cancer is different but there's no point assuming anything until you have the results. Sometimes writing a journal can be a good way of getting the fear out of your head and onto the page.
I wish we didn't have to go through this awful "scanxiety". At least here at this site everyone understands how you feel.
Best wishes
Maureen
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hugs my dear... and as someone here said... it can go anywhere... but in all the time and things I've read about it - the brain I haven't heard of in terms of spread.
maybe you have sinus issues? or it could be stress related...
or possibly narrowing or your carotids? decreased blood flow caused by IMRT...
It could be a number of things.
take care and let us know what happens.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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