| | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Feb 2007 Posts: 176 | I was diagnosed 10 years ago this week. My does time fly.
A couple of months ago I noticed that I had oral thrush.
I spent about 4 weeks on Fluconazole, which didn't help.
I've been washing my mouth out with 3% peroxide, along with sporadically painting my tongue with Gentian Violet.
Any suggestions?
All the best,
Rob
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | My doc told me along with the medicine to eat lots of yogurt to help with thrush. Thats the only thing I can think of that helps with thrush.
Good luck and congrats on your 10 years!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Congratulations, Mr Decade!
Don't forget Manuka honey, although it has gone up 50% this year. There is also Three-Lac and Five-Lac that both work well.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | Congratulations Rob! Oral thrush, basically an out of control yeast infection, can be contributed to a number of things including antibiotics, diabetes, dentures, dry mouth, weakened immune system, and of coarse cancer treatment, all of which you may be familiar with, and basically thrives since your body can't maintain the proper balance of good/bad bacteria. Thrush feeds on sugar, yeast, alcohol, and processed foods, so limited those may help, but heard Manuka honey, as mentioned, has antibacterial properties that may help, probiotics too, if the immune system is not severely compromised, brushing, rinsing after meals, before bed. You could also have become resistant to the fluconozole, which may be switched to a different azole medication like clotrimazole or need of an increased dosage, nystatin, antibacterial rinse or other medication. I also heard of other thrush home remedies, but will let you search that out, and improving your immune system. Btw, as far as I know, peroxide dries the mouth, usually rinsed after using. For the sake of others, and I'm no expert, but just mentioning it's very curable, if treated properly, but oral thrush can get out of control, especially with a compromised immune system like with cancer including its treatment, and can go to the esophagus, stomach, and then blood line, even through the gums or an ulcer in the mouth, and becomes invasive candiasis throughout the body, also known as disseminated candiasis, can effect the organs, and is difficult to treat, usually by a strong IV anitiviral and antibiotics, and can be deadly as high as 40%. This happened to me in 2009. As usual, consult with your doctor. This OCF link explains it better than I can for those interested. http://oralcancerfoundation.org/complications/candida-infection.php
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
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