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SUEZ #149997 05-25-2012 11:39 AM
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No. I haven't tried that. I have had chipped ham and thinly sliced salami. I have actually eaten a small piece of pizza as long as the crust is fairly thin. I know. Eating in public is no fun. My husband is very patient and lets me take my time, but if I go with anybody else I feel as if I am holding them up. Unfortunately, I have never liked baked beans, otherwise I am sure that those would work. I had lunch at our local coffee shop today, and they had Italian wedding soup, and I thought that would work, but the meatballs and spinach stuck to my teeth, so I finally gave up. Some days are beter than others, I guess that I just need to keep trying different things.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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"My husband is very patient and lets me take my time, but if I go with anybody else I feel as if I am holding them up. "

Okay, I think you need to do the Scarlett O'Hara at the barbeque trick (remember, back in the day 'ladies' didn't chow down in public). Basically, you eat before you go out to eat. Snarf down a protein shake, for example. Then you go out to eat, and have a small portion or appetizer ... you get the pleasure of company and something different to taste without the need to rush. Very French.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Maria #150001 05-25-2012 12:55 PM
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Well, Fiddle Dee Dee! That's a pretty good idea. I usually do just have an appetizer, and most of my friends are used to me bringing my Ensure with me. French onion soup works pretty well, too, as long as I try not to eat much of the cheese. The soup makes the croutons nice and soft and mushy.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
Joined: Apr 2012
Posts: 60
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Hi everyone! I haven't really posted much but read all the time on this site. I can't eat or swallow yet, but hopefully that will change at the end of June. I have a peg tube, but I do cheat with foods. I have found most everything burns my tongue and throat. Does that happen to you all when you try to eat or swallow.


10/10 IV OSCC metastatic to lymph nodes. 10/10 Peg,Port,Trech. due to rad scarring cannot swallow. 9/12 Pet clean. SCC back again 11/12. Tumor attached to jugular, Rad DX left side of neck 11/19/12. No Chemo or Rads. MRI on 1/11/13 for chronic pain w/pet scan 2/15/13.
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Ooo Zen buy the stouffers chipped beef! make some toast take off crust if too hard Ron does that and put the chpped beef over it! He loves that too, or make your own if you know how if not and want to know how if you like it let me know!


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
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Hey, Suez, I hadn't thought of that. I should have, though. I make a dip with sour cream, mayo, dill, and chipped beef and I can eat that. I serve it in a rye bread bowl and dip the bread in it. I make it every Christmas, and if I get it really goopy I can even eat the bread.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
Joined: Dec 2010
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"OCF Canuck"
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Hey it's okay - probably the sensitivity to the acids etc... It takes a whole of trying and practice and maybe chasing it with something smooth.... Protein shake to sooth it. Good luck


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Wish I hadn't used my name..I was still in shock. Put the cigarettes down easily..not so the alcohol. Was in AA sobriety for 17 years..but then I picked up. Die or drink? If you haven't had the obsession then it doesn't make sense..I'm trying..or am I dying!?

Just venting..


I am a 65 year old reitired woman. I have been married to a great man for 42 years. I had a right breast masectomy 15 years ago.





squamous cell carcinoma under my tongue was diagnosed earlier this month. I had surgery 2/3/15. 22 lymph nodes out of my neck came back negative for metasis. The Drs. say I do not need chemo or radiation. I'm off the feeding tube and now on a liquid/soft food diet. I see the surgeon again next week. I am grateful and optimistic.
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