| | Joined: Jul 2014 Posts: 29 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jul 2014 Posts: 29 | Hi Everyone!
I disappeared for a while-tx was over, hubby was getting better, I went deep into denial and avoidance. Finally sought therapy for myself, am doing much better, too. On the kids 12th birthday we get a call, spots on lungs. What a day to hear that. Today, 8 days and a biopsy later we learn the spots are indeed cancer. So, Monday at dawn we will drive the long drive to San Antonio to see his oncologist and learn about and discuss treatment options. Sigh. Trying to remain optimistic and not fret too much until we hear what all the doc has to say. I figured I should come back here, and try to stay 'active' here so I don't 'run' back into my world of denial and avoidance again. I so need the support and would love to offer support, too. Thank you all for being here!
Husband tongue cancer 7/01/14 (forward/right half of tongue)
43 years old at diagnosis
Partial glossectomy/node removal 7/31/14
PEG tube placed
2 mos high dose radiation
2 treatments cisplatin, 3rd was cxld due to hearing issues
cancer in both lungs, stage 4, 05/18/15
chemo port to be placed on 05/21/15
Full scan on 05/21/15
Chemo, 3-4 types (names etc coming soon) for 7 mos
4th type depends on clinical trial and if placebo or not
He is planning to defy all odds and kick this cancer!
| | | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | | "OCF Down Under" Gold Member (200+ posts)
Joined: Mar 2014 Posts: 286 | Sorry to hear this JK. You're right, don't fret too much and see what the doc says, then work through the options. We're still here for you and your husband.
Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Not the news we want to hear, jklamert. I'm sorry so much has been dumped on you, yet again. Lean on us and we will do our best to support you. I am hoping for the best possible outcome for your husband.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Mar 2014 Posts: 110 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2014 Posts: 110 | jklamert,
I am so sorry to hear this news. We received similar news during the holidays last year -- lung mets six months out. There never is a good time. See what your oncologists say, listen to the options and definitely talk about clinical trials -- things are changing all of the time!!
Keep your hope alive and wish your husband the very best from a former soldier fighting precisely the same fight! I am sincerely hoping for the best for you and your family.
The Hellion
SCC Base of Tongue
Diagnosed 3/5/2014 T2N2C
PEG Installed 3/19/2014
Chemo/Rad 3/27/2014
1x Cisplatin, 4+ TaxoCarboplat + 33 * 70 gy
Chemo FINISHED 5/5/2014
Rads FINISHED
PEG tube removed 10/08/14
Back to work 4 Aug full time
1/19/15 - diagnosed mets to lungs
7/17/15 began Pembrolizumab clinical trial demitted October 2015
1/14/16 began Tremi-MEDI trial
-This far, no further! On ne passe pas!
**update** passed away 3/26/16 RIP, you will be missed by many
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