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Joined: Apr 2015
Posts: 1
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Joined: Apr 2015
Posts: 1
Hi,

My husband was diagnosed a week ago with SCC of the hard palate, stage 4. No sign of any spread to the lymph nodes, thank goodness. He will have surgery ina few weeks and they say they will need to take out half of his palate and upper jaw. He will need to wear a prosthesis.

So, we are glad it isn't worse but we are worried about the surgery obviously but mostly about what it is like to live with a prosthesis. Is there anyone out there who has one?

Will it hurt? Will my husbad be able to talk?

I know we will get through it but right now it is a little scary.

Thanks.

Joined: Dec 2010
Posts: 5,260
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
There are a few people here who've had palate cancer - they can speak they use an orburator to replace the missing piece. Pain depends on your hubby's tolerance but usually the nurses work to keep him comfortable.
Hugs and welcome - I'm sure someone who's been through it will comment soon.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Jun 2007
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Welcome to OCF! Im sorry you have the need for our group. Im sure we will be able to help you with info and support for your husband. There are some members who use a prosthesis. Im sure one or more will add their input soon. Its natural to be afraid of the unknown. Its not easy but most patients can bounce back amazingly well after this type of surgery.

As far as pain, most patients will experience pain after such a major surgery, especially if nerves are involved. I found its best to make sure the pain is kept under control by asking the doc to prescribe 2 different pain meds. This way the patient can switch off and on, never having to wait until its the right time for their next dose.

Your husband should be able to talk. His speech probably will be quite off immediately following the surgery. He probably will need a speech pathologist to help with enunciation and learning how to eat with his changed mouth.

Stick with us and we will help you both get thru this.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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