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#189308 04-25-2015 06:33 AM
Joined: Nov 2014
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Posts: 73
Hello I am 12 weeks out of treatment for BOT cancer Stage 4, 2N and have recently about 20 days noticed the red marks appearing on my neck and seen to be getting worse. I've tried everything changing soap, etc. there is a dry skin patch which appears on red marks. Has anyone had this happen and have any suggestions?

Last edited by larry6905; 04-25-2015 06:34 AM.

T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016
Joined: Oct 2012
Posts: 1,275
Likes: 7
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Joined: Oct 2012
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Larry, are you using Ivory soap or some mild soap? Maybe the skin is irritated. Do a saline soak of the red patches three or four times a day and then put cream and a non-stick bandage on it. Hopefully this will help.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Joined: Nov 2014
Posts: 73
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Joined: Nov 2014
Posts: 73
I use a non-allergenic soap both on neck and in laundry. I didn't change anything when the rash appeared approx 3 weeks ago. Could this have anything to do with the lymphedema? That is the only place where it is located.

Last edited by larry6905; 04-29-2015 10:54 AM.

T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016
Joined: Dec 2003
Posts: 2,606
Likes: 2
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Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
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I don't know if I asked, but what does the doctor say? There are some less than positive possibilities and at your point in recovery, anything different needs to be directed to your medical team.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Joined: Oct 2012
Posts: 1,275
Likes: 7
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Patient Advocate (1000+ posts)
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Larry, Uptown has given you good advice. Do talk to your doctors about the red patches.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Joined: Nov 2014
Posts: 73
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Nov 2014
Posts: 73
Hello sorry, I saw Rad and dermatologist said radiation rash gave me Elidel to put on cleared it up right away. I also saw ENT who said I had a early infection cellulitis so took bactrim and predizone. I am better and rash and infection is gone.
I am getting back to being more like myself. Still get fatigued but I am finally eating again and looking toward to having gtube removed. I am seeing speech pathologist for therapy.
Thanks for everyone's input.

Last edited by larry6905; 06-21-2015 05:39 AM.

T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016

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