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Joined: Nov 2014
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Joined: Nov 2014
Posts: 73
I am 10 weeks out and had a pet scan last Thursday. Got concerned when no one called me back. So 7:30am I was told all bot and nodes above clavical were clear but they found a new low grade spot on lung. They were comparing all my lung X-rays and scans.

Does anyone know anything or had similar experience?


T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016
Joined: Jul 2012
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It's very common that lung abnormalities are seen on imaging post treatment, most of which resolved over time. Mine were surmised to be from scarring from pneumonia, could be inflammation, infection, and hopefully is something minor.

Good luck with the follow-up.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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"OCF Canuck"
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"OCF Canuck"
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Ditto what Paul said. There are also environmental things, etc... hugs and hopefully it's nothing.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Ditto. Try not to worry. They will watch over time and as long as it does not grow, all is well. I had same thing. After several scans over a year, it did disappear.


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
Joined: Nov 2014
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This is what 11/2014 pet about lung said:

Ground-glass infiltrative process in the basilar segment of the right upper lobe, demonstrating minimal metabolic activity, with a maximum SU value of 3.18. � There is also some ground-glass infiltrative process in the left upper lobe. There is an area of consolidation - that may represent some consolidation, with slightly thick-walled cavity in superior portion � involving the posterior aspect of the lingula, abutting the major fissure. This measures approximatively 2 cm. There is 'also a 5 mm smoothly marginated nodule, apparently in the right middle lobe near the confluence of the major and minor fissure. There is a calcified granuloma in the lateral aspect of'the right upper lobe. There are some small nodes demonstrated in the AP � window and anterior carinal region.

This is what the new April 2015 PET scan actually said about lungs:

The ground-glass previously described in the anterior aspect of the right upper lobe has now consolidated into an 11 mm nodule. This Nodule has only very mild metabolic activity maximum SUV of 1.82. The evolution of this density is suggestive of low-grade adenocarcinoma in situ.

Right upper lobe lesion has evolved into a nodular density, this very likely represents a low-grade neoplasm. Follow-up examination is recommended in four months by CT.

I recently saw my chemo oncologist who said I was the big discussion at cancer conference. I don't know what that meant. She also said they all came to look at the scan and asked what radiation Dr had told me. I said he said it was in a bad spot and he didn't think it was anything.

But now that I have read PET I am conflicted. Should I seek a second opinion or just wait?

Last edited by larry6905; 06-03-2015 07:30 AM.

T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
It it's an adenocarcinoma then it's not SCC - I would ask that they remove it if possible. and maybe try to take the neoplasm to.

Why wait?

hugs


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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