| | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Apr 2014 Posts: 236 | Hi Chuck
Welcome to a fantastic group of people here at OCF.
Go ahead and ask all the questions you have . There is usually someone here who has gone through what ever question you have . We all pitch in our experience and are here to help .
Good Luck
Heidi
Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015
| | | | | Joined: Nov 2013 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2013 Posts: 104 | No way could I eat orally after about 25 days into treatment. My sense of smell and taste were so fouled up that everything smelled abhorrent.
I had a PEG and had a love/hate relationship. I couldn't have done it without it. But the operation and the discomfort of having it are not negligible.
Brian
Stage IV TxN2aM0 HPV+ SCC 38 y.o. male
9/20/13 Sentinel Node Found
12/5/13 Start of 72Gy and 5 bags of Cisplatin
1/21/14 Treatment Ends
1/25/15 1 Yr clear
| | | | | Joined: Apr 2015 Posts: 91 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2015 Posts: 91 | I was also diagnosed with the same. They went straight to chemo and rad without any surgery? Sorry if that's a dumb question. Denise
Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Denise the treatment plan can greatly vary depending on size, location and staging of the tumor. Each case is individual and slightly different. Treatment plans should not vary due to where the patient is treated but I would be surprised if the NCI guidelines were always adhered to at every facility. Best thing a patient can do is seek out the very best medical team of professionals they can and go with it. Second guessing only causes unneeded stress at an already very stressful time.
PS... Please use the link in the PM I sent you to make a signature. Thank you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Niecy... is your cancer oral (inside the mouth ?) or down the throat) base of tongue? Many confuse the two. If it is an actual tumor in or on your oral tongue (usually under on the side) It's generally best treated with surgery. There was an interesting video the other day about the standard treatment and covers all the standards of treatment. If it's related to HPV - base of tongue or tonsillar then rads and chemo is your best bet right out of the gate as this type of cancer ( HPV related) responds best to Rads and chemo. However non HPV oral tongue, oral mucosa cancer is usually treated surgery first and then follow up with rads and chemo. That is the standard. Hope this clarifies things. Hugs.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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