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#189001 04-04-2015 09:09 PM
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Alpaca Offline OP
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I know there are references to this throughout the forum but I wondered if anyone could give me some guidelines. I'm about 6 weeks short of a year since RT finished. While I recovered my energy quickly after treatment, I have suffered some puzzling bouts of fatigue recently. Driving home from a day in town I'll feel my eyes wanting to close. When I get home after an outing I just want to go to bed even if it's the middle of the day. I've also put a bit of weight on recently after staying pretty stable since rads. I'd love this to be thyroid related because then I would have a quick fix!

I was told that thyroid malfunction usually starts a couple of years down the track but I guess there would be a big variation.

Ironically (apart from some dental decay) my mouth feels more comfortable than it has for over a year.

When do your doctors recommend a thyroid check? How often do you get it checked? I guess it could also be anaemia. I'm not exactly eating a normal diet.


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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I think it's time you got your GP to check your Thyroid function. Kris's Thyroid had failed by the 12 month mark. He takes Levothyroxin tablets as a replacement. We did need to adjust the dose in the first year he took them. I did blood tests every 3 months. As we need to keep a close eye also on his Calcium levels ( his Parathyroids also don't work), I continue to check Thyroid function 3 monthly.
From being tired and very cold, Kris now has plenty of energy and feels hot again.
Get thee to your GP,
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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John's thyroid failed about six months after RT. The symptoms you described sure sound like some kind of thyroid problem. Do go and get checked. You can also get checked out for anaemia at the same time if you are concerned.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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Its very common for the thyroid to not function normally after rads. For me it was several years after rads when I first began needing thyroid meds. Im 7.5 years post rads and 5.5 years since my last bout of OC. I get my thyroid levels checked a few times ayear.

When you go to get checked out, ask your doc to also check for anemia. Thats pretty common as well. Its probably best to have a full blood panel done to check everything. Post rads, it can take the body a couple years to regulate itself to its new normal. Men should also have their testosterone levels checked.

Good luck!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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It took 4 years years for my thyroid to malfunction. They should check the thyroid twice yearly, post radiation, maybe sooner, more frequent, once levels start to change. As Tammy mentioned, I'm not as cold, have a little more energy after taking the Synthroid. In addition, have vitamin D levels, B12, and testosterone checked, as those can be effected too.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Alpaca Offline OP
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Thank you everyone. Now that Easter is over I'll make an appointment to see a GP ASAP. Time for some blood tests.



1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
Joined: Nov 2013
Posts: 104
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Yep mine started failing at the year mark... Was dragging at work till I started synthroid


Brian
Stage IV TxN2aM0 HPV+ SCC 38 y.o. male
9/20/13 Sentinel Node Found
12/5/13 Start of 72Gy and 5 bags of Cisplatin
1/21/14 Treatment Ends
1/25/15 1 Yr clear
Joined: Mar 2014
Posts: 79
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Hi Alpaca
Hope you enjoyed Easter ? My thyroid failed 16 months about of treatment I too felt really tired , cold and emotional ,I'm still having blood tests every 6 weeks whilst they try to get me on the correct amount of levothyroxine , it's been increased twice and I'm just beginning to feel a bit warmer and can stay up past 9.00 pm now ! Lol
Still on 3 iron tablets a day as struggling with anemia also . Hope you get it sorted out x
Thank you all for your continuing support


Di 47 none smoker / drinker

T4 SCC left tonsil
1 Cistplatin,30 RAD finished treatment on 4/12/2013
Trismus
First MRI scan appears clear
TX
NG tube 9 weeks
acute vommiting, syringe driver 9weeks
2 month checks
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Alpaca Offline OP
"OCF Down Under, Kiwi"
"Above & Beyond" Member (500+ posts)
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Thank you Di. I've had a blood test. Just waiting for the results:)


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
Joined: Nov 2009
Posts: 644
Likes: 1
Alpaca Offline OP
"OCF Down Under, Kiwi"
"Above & Beyond" Member (500+ posts)
OP Offline
"OCF Down Under, Kiwi"
"Above & Beyond" Member (500+ posts)

Joined: Nov 2009
Posts: 644
Likes: 1
I got my blood test results today. The nurse said my thyroid is fine but I'm iron deficient. Iron tablets needed.

So that could explain my fatigue and gives me a reminder to eat a more balanced diet. It's hard because all I really want to eat is ye olde smoothie and tonnes of ice cream:) Naughty.


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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