| Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Apr 2014 Posts: 236 | After only 3 HBOT the drainage in moms open wound has stopped . She visits the wound care doctor once a week to have it checked and measured . Guess what everybody the wound is already measuring a little smaller with only 3 treatments .
I must say she is one strong momma . The HBOT really make her weak in fact she couldn't make it through the 90 minutes yesterday . I called the Chemo doctor and told him she was feeling weak and drained . He had her come to the office and gave her some IV Fluids and by the end of the day she had more pep in her step . Lol.
We will keep on battling the beast .
Thanks Heidi
Last edited by sweetpe1; 03-24-2015 10:23 AM.
Sweetpe Caregiver RE:My Mother Age 70 Non Smoker SCC 3/4/2014 Left rear jaw Mandiblctmy 3/25/2014 35RAD Completed on 06/03/2014 MRI 9/3/2014 25mm lobulated recurrence left mandible/floor of mouth carcinoma 9/23/14 Salvage Surgery MET(s) 9/23/14 Salvage Surgery Not Successful Chemo Recommended 1st Round of Cisplatin Chemo Started 10/20/14 Cisplatin stopped 11/20/14. Side affects to bad. Chemo started again 1/22/15 Carbo/Docetaxel Passed Away April 22,2015
| | | | Joined: Sep 2014 Posts: 87 Likes: 2 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Sep 2014 Posts: 87 Likes: 2 | Well, that's great news! I guess now it's up to her to attempt to increase water intake in order to avoid the dehydration.
Dx 2014Jan29 (42 yr old otherwise fit nonsmoker) SCC tongue stage III T3N0M0 subtotal glossectomy, partial neck dissection, RFFF, trach, NG tube 2014Feb25 16 days in hospital RAD 25 zaps 2014May5-2014Jun9 Back to work, paddling & hiking shortly afterwards
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | Good to hear. Many claim HBOT increases they're energy. Not me, made me tired, and napped every time I got home. The daily commute could have been a factor. I did 60 minutes, which may have been shortened by a faster descent, ascent.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) Joined: Nov 2009 Posts: 644 Likes: 1 | That is such great news, Heidi.
1996, ovarian cancer surgery + cisplatin and taxol. September, 2007, SCC of left lateral tongue. Excision. October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT. February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Thats excellent news!!!! I was hoping it would help, so glad it did. Great job at advocating for your mother! Getting hydration always helps.
HBO has always helped me to heal whenever I had healing difficulties. After about 7-10 dives your mother may notice changes in her eyesight. Make sure she tells the doc about this. For most its only temporary but Ive heard someone mention it speeding up their glaucoma.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Apr 2014 Posts: 236 | Thanks everyone
It seems like when my mom comes out the chamber she feels really drained and weak. The doctors told us she would be very fatigue . I guess between the Chemo and HBOT it's taking a lot out of her . We are continuing to hang in there and hope for some good results in the end .
Thank you all Heidi
Sweetpe Caregiver RE:My Mother Age 70 Non Smoker SCC 3/4/2014 Left rear jaw Mandiblctmy 3/25/2014 35RAD Completed on 06/03/2014 MRI 9/3/2014 25mm lobulated recurrence left mandible/floor of mouth carcinoma 9/23/14 Salvage Surgery MET(s) 9/23/14 Salvage Surgery Not Successful Chemo Recommended 1st Round of Cisplatin Chemo Started 10/20/14 Cisplatin stopped 11/20/14. Side affects to bad. Chemo started again 1/22/15 Carbo/Docetaxel Passed Away April 22,2015
| | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | That is a great report! I'm glad it is working for her. I've always wondered what one is able to do while during "dive". Can you read or watch tv or anything?
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | Not much in the single person tube, Don. Sleep or watch TV. Mine had cable TV, and DVD player on the outside, with speakers in the tube, which were controlled by the technician or doctor. I brought my own movies. Lets just say, Seinfeld wasn't funny. You couldn't bring anything in the tube like a book, food, drink, and wore only a gown, but I kept my socks on, a few wore eyeglasses, and those that couldn't wait, carried a urinal.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | I did my HBO at 2 different locations. Both places had a chart prominently displayed in the dressing room telling you what you cant take in. I was always allowed a water bottle with the label removed. Other than that, the nurse always told everyone "If you werent born with it, then it doesnt go in the tank". That meant no dentures, makeup, false eyelashes, jewelery, or even dyeing your hair when doing HBO. Where I went eyeglasses and contacts werent allowed, they didnt even let you wear your own socks they made you wear the hospital ones. It was an individual tank where you either slept or watched tv. I got thru the entire Sopranos series while doing HBO. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Oct 2006 Posts: 383 | Thanks for sharing this information! I saw the title and thought I would explore as this treatment has come up a couple times when talking about my teeth, possible issues (And the future).
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
| | | | Joined: Jan 2015 Posts: 37 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jan 2015 Posts: 37 | Heidi, I'm happy to hear of the good news for you and your mom. It is very welcome after all the not-so-good news.
Re dives, I was fortunate to be in a large chamber and we were able to bring in reading material and just about anything that wasn't electronic or that might cause a spark, especially from static electricity.
That was a safety precaution due to risk of fire; I imagine the overall oxygen level in the chamber would be such that a fire would kill everyone inside. Before treatments, we would strip down to our underwear and then put on special jumpsuits and slippers which were supposed to be static-proof.
I believe I wrote in a post on another thread that most people read books/magazines, there was one lady who knitted, and I wrote letters to my fiance (now my wife). We weren't allowed to bring food or drink in but each time we surfaced between descents, twice per session, they would provide us with drinks - juice, soda, water - and light snacks, such as crackers IIRC.
That was 17 years ago; I'm sure there have been some changes since then.
Andrew 4x survivor 1998 - SCC of larynx ...laryngectomy, tracheotomy, radiation, caries, HBO, teeth extr, TEP 2002 - lung cancer, wedge resection 2014 - SCC of BOT, pharynx, oropharynx, HPV-, stage IV, T2N0MX, invasive, poorly differentiated ...chemo (carboplatin, taxol), dc'd due to neuropathy 2015 - SCC of palate ...Feb-April IMRT (46 x 70 Gy) ...Jan 2015 - May 2016 cetuximab 500 mg q week x 55wks 2016 - metastases to mediastinum, lungs, spleen, pancreas ...Aug-? pembrolizumab q 3 wks
| | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | Well if that ever happens to me, I'll just sign up for 9am and pull an all nighter then snore the whole time. lol
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Apr 2014 Posts: 236 | UPDATE
Looks like the Chemo and HBOT didn't go well together.
After taking about 10 HBOT and then taking a Chemo treatment my mom has now landed back in the hospital. Seems like the Chemo destroyed the mending tissue from HBOT and now the wound is much worse.
Back to square one. I think my mom is going to take a break from the Chemo . At least for a few weeks until her body can maybe get a little stronger.
What a let down of our hopes and prayers.
The doctors have now started my mom on a Morphine Pump in the hospital because her pain level is so severe. The problem is in order to go home with this Morphine Pump Hospice must be involved. My mom is not mentally ready for Hospice. She still wants to battle this beast. Me personally I cant stand to see her go through so much pain and I have come to terms with the likely outcome. However I will let my mom make this decision .
The doctors said the Chemo would not affect the HBOT but now it was all for nothing.
Prayers for my mom Heidi
Last edited by sweetpe1; 04-12-2015 07:36 PM.
Sweetpe Caregiver RE:My Mother Age 70 Non Smoker SCC 3/4/2014 Left rear jaw Mandiblctmy 3/25/2014 35RAD Completed on 06/03/2014 MRI 9/3/2014 25mm lobulated recurrence left mandible/floor of mouth carcinoma 9/23/14 Salvage Surgery MET(s) 9/23/14 Salvage Surgery Not Successful Chemo Recommended 1st Round of Cisplatin Chemo Started 10/20/14 Cisplatin stopped 11/20/14. Side affects to bad. Chemo started again 1/22/15 Carbo/Docetaxel Passed Away April 22,2015
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Continued prayers for you, Heidi, and your mother.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) Joined: Nov 2009 Posts: 644 Likes: 1 | You are a great daughter, Heidi. Regards to your mother.
1996, ovarian cancer surgery + cisplatin and taxol. September, 2007, SCC of left lateral tongue. Excision. October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT. February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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