| | Joined: Jan 2015 Posts: 37 Contributing Member (25+ posts) |  Contributing Member (25+ posts)
Joined: Jan 2015 Posts: 37 | Heidi, I'm happy to hear of the good news for you and your mom. It is very welcome after all the not-so-good news.
Re dives, I was fortunate to be in a large chamber and we were able to bring in reading material and just about anything that wasn't electronic or that might cause a spark, especially from static electricity.
That was a safety precaution due to risk of fire; I imagine the overall oxygen level in the chamber would be such that a fire would kill everyone inside. Before treatments, we would strip down to our underwear and then put on special jumpsuits and slippers which were supposed to be static-proof.
I believe I wrote in a post on another thread that most people read books/magazines, there was one lady who knitted, and I wrote letters to my fiance (now my wife). We weren't allowed to bring food or drink in but each time we surfaced between descents, twice per session, they would provide us with drinks - juice, soda, water - and light snacks, such as crackers IIRC.
That was 17 years ago; I'm sure there have been some changes since then.
Andrew
4x survivor
1998 - SCC of larynx
...laryngectomy, tracheotomy, radiation, caries, HBO, teeth extr, TEP
2002 - lung cancer, wedge resection
2014 - SCC of BOT, pharynx, oropharynx, HPV-, stage IV, T2N0MX, invasive, poorly differentiated
...chemo (carboplatin, taxol), dc'd due to neuropathy
2015 - SCC of palate
...Feb-April IMRT (46 x 70 Gy)
...Jan 2015 - May 2016 cetuximab 500 mg q week x 55wks
2016 - metastases to mediastinum, lungs, spleen, pancreas
...Aug-? pembrolizumab q 3 wks
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | Well if that ever happens to me, I'll just sign up for 9am and pull an all nighter then snore the whole time. lol
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Apr 2014 Posts: 236 | UPDATE
Looks like the Chemo and HBOT didn't go well together.
After taking about 10 HBOT and then taking a Chemo treatment my mom has now landed back in the hospital. Seems like the Chemo destroyed the mending tissue from HBOT and now the wound is much worse.
Back to square one. I think my mom is going to take a break from the Chemo . At least for a few weeks until her body can maybe get a little stronger.
What a let down of our hopes and prayers.
The doctors have now started my mom on a Morphine Pump in the hospital because her pain level is so severe. The problem is in order to go home with this Morphine Pump Hospice must be involved. My mom is not mentally ready for Hospice. She still wants to battle this beast. Me personally I cant stand to see her go through so much pain and I have come to terms with the likely outcome.
However I will let my mom make this decision .
The doctors said the Chemo would not affect the HBOT but now it was all for nothing.
Prayers for my mom
Heidi
Last edited by sweetpe1; 04-12-2015 07:36 PM.
Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Continued prayers for you, Heidi, and your mother.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | You are a great daughter, Heidi. Regards to your mother.
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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