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Joined: Apr 2014
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After only 3 HBOT the drainage in moms open wound has stopped . She visits the wound care doctor once a week to have it checked and measured . Guess what everybody the wound is already measuring a little smaller with only 3 treatments .

I must say she is one strong momma . The HBOT really make her weak in fact she couldn't make it through the 90 minutes yesterday . I called the Chemo doctor and told him she was feeling weak and drained . He had her come to the office and gave her some IV Fluids and by the end of the day she had more pep in her step . Lol.

We will keep on battling the beast .

Thanks
Heidi


Last edited by sweetpe1; 03-24-2015 10:23 AM.

Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


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Well, that's great news! I guess now it's up to her to attempt to increase water intake in order to avoid the dehydration.


Dx 2014Jan29 (42 yr old otherwise fit nonsmoker)
SCC tongue stage III T3N0M0
subtotal glossectomy, partial neck dissection, RFFF, trach, NG tube 2014Feb25 16 days in hospital
RAD 25 zaps 2014May5-2014Jun9
Back to work, paddling & hiking shortly afterwards
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Good to hear. Many claim HBOT increases they're energy. Not me, made me tired, and napped every time I got home. The daily commute could have been a factor. I did 60 minutes, which may have been shortened by a faster descent, ascent.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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That is such great news, Heidi.


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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Thats excellent news!!!! I was hoping it would help, so glad it did. Great job at advocating for your mother! Getting hydration always helps.

HBO has always helped me to heal whenever I had healing difficulties. After about 7-10 dives your mother may notice changes in her eyesight. Make sure she tells the doc about this. For most its only temporary but Ive heard someone mention it speeding up their glaucoma.





Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Apr 2014
Posts: 236
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Thanks everyone

It seems like when my mom comes out the chamber she feels really drained and weak. The doctors told us she would be very fatigue . I guess between the Chemo and HBOT it's taking a lot out of her . We are continuing to hang in there and hope for some good results in the end .

Thank you all
Heidi


Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


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Posts: 1,291
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That is a great report! I'm glad it is working for her. I've always wondered what one is able to do while during "dive". Can you read or watch tv or anything?


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
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Not much in the single person tube, Don. Sleep or watch TV. Mine had cable TV, and DVD player on the outside, with speakers in the tube, which were controlled by the technician or doctor. I brought my own movies. Lets just say, Seinfeld wasn't funny. You couldn't bring anything in the tube like a book, food, drink, and wore only a gown, but I kept my socks on, a few wore eyeglasses, and those that couldn't wait, carried a urinal.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Jun 2007
Posts: 10,507
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I did my HBO at 2 different locations. Both places had a chart prominently displayed in the dressing room telling you what you cant take in. I was always allowed a water bottle with the label removed. Other than that, the nurse always told everyone "If you werent born with it, then it doesnt go in the tank". That meant no dentures, makeup, false eyelashes, jewelery, or even dyeing your hair when doing HBO. Where I went eyeglasses and contacts werent allowed, they didnt even let you wear your own socks they made you wear the hospital ones. It was an individual tank where you either slept or watched tv. I got thru the entire Sopranos series while doing HBO.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Oct 2006
Posts: 383
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Joined: Oct 2006
Posts: 383
Thanks for sharing this information! I saw the title and thought I would explore as this treatment has come up a couple times when talking about my teeth, possible issues (And the future).


SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

**** PASSED AWAY 10/8/16 ****

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