Hi, I am a 32 year old Vet and oral cancer survivor. Last two years have been bad and at times felt like I just wanted to stop but I got through it. I lost my tongue and I eat thru a Gtube now. I am from Florida. Physical pain and depression are what keep me up at nights.

-Extremos

Hi Extremos

Welcome to a group of wonderful people who have gone through and still going through what you are experiencing.

I am a care taker for my mother who is also in a battle with oral cancer. Its a hard road indeed.

I'm sure others will respond who have had the same surgery as you. You will find this forum very helpful. Its nothing like talking to others who know first hand what your going through.

Heidi

Hello, I just want to say welcome.
My husband too has had a total Glossectomy. I'm presuming that was your surgery? Hang in there. It does get better. I hope you have family support to get you through this. This group will help you enormously. There will always be someone around who has experienced what you have and who will be able to answer any queries you may have.
Tammy

Welcome to OCF! Im glad you found our group. You arent alone in this. We have several members who have had total glossectomies and understand the struggles you go thru.

Being depressed is common with OC patients. Its not easy living with a new changed life. I do it every day too. Im now disfigured after losing half my lower jaw to OC. Being different in a society thats all about looks is very difficult. Have you considered seeking out someone you could talk to? Many patients and even caregivers have been greatly helped by therapists and some take anxiety meds. They are all tools to help make it thru the day.

Hang in there! We really do understand where you are coming from. We are right there with you going thru the same things.

Hi there... welcome. There area few people here who've had similar surgery. Did they rebuild your tongue? I know it's hard not to get down, socially food, is very important, but I urge you to find your passion and chase it. Hugs.

Hi everyone don't no iff this is correct one to post on but I'm just looking for bit of help and support my dad has undergone a total gossectomy and is only on day five x his trac been took out and he has had a new tongue reconstructed with tummy muscle x he's been having a bad time with saliva and secretions coughing them up x I think he is producing a lot of saliva does anyone no the reasons why and how long secretions will last x we are all struggling to come to terms with my dad loosing his tongue he will always be peg fed and just wondering if anyone else has experienced this and if you can still communicate and eat small amounts xx

How are you doing, Extremos?