| |
| | Joined: Mar 2015 Posts: 1 Member | OP  Member
Joined: Mar 2015 Posts: 1 | Aloha - My mother had the left bottom jaw removed due to bone cancer back in 2007. She has been experiencing chronic pain and tightness. Does anyone have any suggestions?
Kehau
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCF! You are in the right place for info and support for your mother.
I also lost my bottom left jaw to oral cancer. Mine was in 2009. First make certain she is healthy and doesnt have any issues. Then I would suggest a physical therapist to try to help with mobility and ease the tightness. It may or may not help but its worth a shot. She could have some nerve damage from the surgery. Chronic pain with such a major invasive surgery is fairly common. Neurontin works very well for that type of pain and it comes in liquid form too if she has any issues with taking pills.
Hope this helps. Good luck!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2014 Posts: 66 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2014 Posts: 66 | See if she can get some PT. Does she do any stretches or exercises? is this new?
HPV+ P16 positive squamous cell carcinoma
Oct 2014 found neck node lumps
Went to Oncologist (TNBC)
Ultrasound
2 CT Scans - body/head and neck
Needle & core biopsy
Pet Scan
Biopsy to find primary w/ anesthesia - failed
Second Opinion found primary & biopsied
Biopsy confirmed HPV+ P16 Squamous cell carcinoma
Radical Neck Dissection 11/22/2014
32 lymph nodes removed - 3 positive
Ported 12/29/14
Chemo and rads to start January 5, 2015
cisplatin weekly 40 mg/m2
Rads M-F for 7 weeks
| | |
| Forums23 Topics18,168 Posts196,924 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
| |
