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Delly #189188 04-15-2015 07:12 AM
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Glad he seems to be feeling up... hopefully it will continue... hugs.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Delly #189193 04-15-2015 02:10 PM
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Thankyou tammy x yes he gets seen by a doctor every Wednesday now so I will go with him x I've been reading swallowing can get worse with radiation so that's panicked me a bit :(( x I'll ring his McMillan nurse tomorro and ask some questions also I'm hoping radiation doesn't cause to many issues as he's really doing well at the moment x one thing I've noticed is he's a bit unsteady on his feet seems a bit off balance just since the operation x thankyou Cheryll :)) xx


Father 60 years old
Diagnoised oc jan 15
Peg fitted 27/2/15
Full tongue glossectomy reconstruc surge ,
Lymph nodes and glands out 5/3/15
Rt 14/5/2015

Delly #189195 04-15-2015 05:21 PM
Joined: Jul 2011
Posts: 945
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Hi, Delly - good luck to your Dad with the radiation. My husbard did not mind the radiation mask because he knew it kept in the correct position. He still has it in the basement and it creeps me out every time I go down there!
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Delly #189206 04-16-2015 04:03 PM
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Thankyou Maria he struggling because he can't block his throat so the saliva goes back and chokes him so he has to keep getting out of mask and breathing he feels bit down today cos there's six week of this x but everytime he stops them he has to start again x he says it's the positioning and the scan cos it to long the radiation is ok but he can't lie flat for that long frown xx


Father 60 years old
Diagnoised oc jan 15
Peg fitted 27/2/15
Full tongue glossectomy reconstruc surge ,
Lymph nodes and glands out 5/3/15
Rt 14/5/2015

Delly #189211 04-16-2015 10:32 PM
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"OCF Down Under, Kiwi"
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That sounds awful, Delly. Surely there's some sort of technique they can use to help him.
I know what he means by the scan. It's quite a lot longer when they do that.
I hope everyone can make a way for him to be more comfortable when he has the treatment. Once everything is up and running times goes quickly. Crossing my fingers for you:)
Maureen


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
Delly #189219 04-17-2015 03:09 PM
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Delly Offline OP
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Hi Maureen there nothing they can do except stop get him out let him out and then start again frown he really panics he can't block his saliva from going down so it ends up choking him hopefully it will dry up soon and then won't be a problem lying flat x three down 27 to go xx he a feeling very tired but think that's all the trips to hospital it takes it out of him xx he's speaking a little bit now only now and again but that's good x


Father 60 years old
Diagnoised oc jan 15
Peg fitted 27/2/15
Full tongue glossectomy reconstruc surge ,
Lymph nodes and glands out 5/3/15
Rt 14/5/2015

Delly #189224 04-17-2015 07:37 PM
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Posts: 945
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Hi, Delly
Your poor Dad - that sounds really miserable. The only thing I could think of would be a suction tube, but I don't think that woud be feasible by the radiation machine.
My guess is that your Dad is going to hit his stride with this in a week or so and be better able to cope emotionally at least.
Best wishes and thinking of you both!
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Delly #189234 04-19-2015 03:28 AM
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Hi Maria the mask to tight to get any sort of tube in only got his nostrils on show bless him xx he said he only stopped once Friday he is trying different techniques x he's feeling very tired already is this normal so soon he's only had 3 lots so far xx


Father 60 years old
Diagnoised oc jan 15
Peg fitted 27/2/15
Full tongue glossectomy reconstruc surge ,
Lymph nodes and glands out 5/3/15
Rt 14/5/2015

Delly #189235 04-19-2015 06:14 AM
Joined: Jun 2007
Posts: 10,507
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Administrator, Director of Patient Support Services
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Many patients take anxiety meds before they go for their radiation treatment. Talk to his doctor right away about getting something to help him get thru treatments. It really is a horrible feeling being bolted down to that tiny table while you are left alone in that room with giant machines moving all around you.

Fatigue will unfortunately get progressively worse. This is where intake plays a huge role. Every single day he should be taking in at the very least 2500 calories and 48-64 oz of water. If he can push and do more than will only help him to feel better and get thru this easier. Radiation treatments for OC patients are brutal to say the least. Take advantage of any tools to help get thru it easier. Ask the doc for an open prescription for extra hydration in the chemo lab. This will make a big difference in how your father feels too. If you can get him to get this done say 3 times a week it will be a big help in boosting how he feels.

Hang in there, we will get you both thru this.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Delly #189242 04-20-2015 01:20 AM
Joined: Mar 2015
Posts: 71
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Hi christene thanks for reply what's hydration in the chemo lab ? X How many weeks after radiation fiinishes do you think my dad will start to feel better does it take a long time. Xx


Father 60 years old
Diagnoised oc jan 15
Peg fitted 27/2/15
Full tongue glossectomy reconstruc surge ,
Lymph nodes and glands out 5/3/15
Rt 14/5/2015

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