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Delly #190019 06-18-2015 03:11 PM
Joined: Jul 2012
Posts: 3,267
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Yes, I'm finished with treatment Delly. My last date was 1/30/14 with Proton Therapy and Carboplatin, and all my scans, 2 PET/CT, CT, and 2 MRI have been clear since. I ran out of the allotted space, so not everything is listed, and abbreviated many items. If you have any questions, explanations let me know.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Delly #190051 06-22-2015 01:35 PM
Joined: Mar 2014
Posts: 79
"OCF across the pond"
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Hi Delly, sorry to hear about your dad, been re reading your posts , thank god for the recent positives.
Not posted myself for a bit as my dad has just been diagnosed with gastro oesophageal cancer , I'm devastated. Think I'm taking this news worse than my own diagnosis. He too will be treated at the Christie.
Thinking of you and your dad ... Hugs xxx


Di 47 none smoker / drinker

T4 SCC left tonsil
1 Cistplatin,30 RAD finished treatment on 4/12/2013
Trismus
First MRI scan appears clear
TX
NG tube 9 weeks
acute vommiting, syringe driver 9weeks
2 month checks
Delly #190053 06-22-2015 02:08 PM
Joined: Mar 2015
Posts: 71
Delly Offline OP
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So sorry to hear about your dad that such sad news and I understand exactly how you feel it's heartbreaking that they have to go through all this when there older x I hope everything goes ok for him and keep strong xxx
That's good news for you Paul I'm glad everything clear I think it's time it have you a break xx


Father 60 years old
Diagnoised oc jan 15
Peg fitted 27/2/15
Full tongue glossectomy reconstruc surge ,
Lymph nodes and glands out 5/3/15
Rt 14/5/2015

Delly #190085 06-24-2015 09:29 AM
Joined: Mar 2014
Posts: 79
"OCF across the pond"
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Posts: 79
Thanks Delly , time to pull that last bit of strength out of the bag , I'm sure it's lurking in there somewhere. Awaiting the MDT meeting then see what the treatment plan is , it's all so horribly familiar , not quite ready to be here again , and I'm pretty sure your not either.
Xx


Di 47 none smoker / drinker

T4 SCC left tonsil
1 Cistplatin,30 RAD finished treatment on 4/12/2013
Trismus
First MRI scan appears clear
TX
NG tube 9 weeks
acute vommiting, syringe driver 9weeks
2 month checks
Delly #190103 06-26-2015 02:11 AM
Joined: Mar 2015
Posts: 71
Delly Offline OP
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I don't no how much strength is left in there :(( dad having op 8th July it's taking the lump and then using muscle and skin from his chest x might have to have breathing tube but hoping not as he really struggled with that last time but they said where the lump is he might not be able to lift his arm up also the cancer may grow back as it's very aggressive :((( I feel so sad for him and they say it all as though it's nothing frown I no it's there job and to them they just get the cancer out and don't really care how much of your face they leave but I can just picture him now in recovery and feel like I want to hide :((( I feel my job is to make him better but I no control over anything x his face is so swollen his lips are massive an sore the radiation is still working but he going through this now for nothing because it didn't even get rid of the cancer :(( xx feeling so helpless at the moment xx


Father 60 years old
Diagnoised oc jan 15
Peg fitted 27/2/15
Full tongue glossectomy reconstruc surge ,
Lymph nodes and glands out 5/3/15
Rt 14/5/2015

Delly #190104 06-26-2015 02:30 AM
Joined: Nov 2009
Posts: 644
Likes: 1
"OCF Down Under, Kiwi"
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That is terrible, Delly. Much love to your father. i know what you mean about matter-of-fact surgeons and the feeling that everything is out of your control. Are you receiving counselling? Does your father have a therapist or someone like that from the Cancer Society?

Best wishes
Maureen


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
Delly #190107 06-26-2015 08:18 AM
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

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Take one day at a time Delly. I had the pectoral flap with my neck dissection for recurrent neck cancer. It's to protect the carotid artery, and in my case, to do reirridation. I did fine with lifting my arm afterwards, did PT, although it was slightly more limited. I hope your husband has even better results.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Delly #190191 07-07-2015 10:02 AM
Joined: Mar 2015
Posts: 71
Delly Offline OP
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Posts: 71
Hi all sorry not been on x quick update operation Saturday in praying this one works frown x none of us have any counciling and nobody comes to see dad we seen McMillan nurse at clinic but she hopeless , we have recently found a lady who comes to see my dad 2 times a week but nobody has pit us in contact with anyone she is a lady who we came across by my auntie cleaning for her friend x she works at spring hill hospice and she has sorted some things for dad x every week we go hospital we tell them about the saliva every week they say ok we can try things but nothing got done this lady is trying some tablets so it's as easy as that and nobody helped ! Xx hope everyone doing ok xx


Father 60 years old
Diagnoised oc jan 15
Peg fitted 27/2/15
Full tongue glossectomy reconstruc surge ,
Lymph nodes and glands out 5/3/15
Rt 14/5/2015

Delly #190192 07-07-2015 12:15 PM
Joined: Nov 2009
Posts: 644
Likes: 1
"OCF Down Under, Kiwi"
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Posts: 644
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Hi Delly. The woman who is helping your father sounds promising but I really think you need more help. My dentist told me that botox injections in some saliva glands can reduce excess saliva. I have no idea if that is relevant but I just want to help. I just wish a social worker or cancer nurse or what we call a district nurse could come and check your dad frequently.

Best wishes!


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
Delly #190197 07-07-2015 03:18 PM
Joined: Mar 2015
Posts: 71
Delly Offline OP
"OCF across the pond"
Supporting Member (50+ posts)
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Posts: 71
Or thankyou yes I think this lady is going to help dad she said there will be nurses coming she will make sure if it smile x Botox was mentioned so that's a possibility if these tablets are no good x I think we will get help now she seems to be pushing for it even just visiting him as he lives alone so gets fed up is go every day but sometimes only sees me for days my brother doesn't go down I've said my piece but I can't force them my sister comes couple times a week I just don't no how they can not go down it's just part of my day now and I couldn't not see him x is everything ok with you now x are you able to eat and drink is all your scans clear xx


Father 60 years old
Diagnoised oc jan 15
Peg fitted 27/2/15
Full tongue glossectomy reconstruc surge ,
Lymph nodes and glands out 5/3/15
Rt 14/5/2015

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