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#188576 03-04-2015 06:21 PM
Joined: Nov 2009
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Alpaca Offline OP
"OCF Down Under, Kiwi"
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"OCF Down Under, Kiwi"
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I'm a year post surgery and 9 - 10 months post rads. Because I lost a lot of teeth, now have two flaps in my mouth and had the mandibular nerve cut, I've struggled with eating. Before Christmas I was fitted with a partial metal denture for my front teeth and some on my good side. I could eat with difficulty with my plate in but now the build up of the molars on the good side has started and I can eat a few more things. I can go to a coffee bar and have some cheesecake and yoghurt. The coffee still dribbles a bit because of the nerve damage but it's reasonably manageable.

The next step is to have a bottom plate made so that I can chew properly on my right side and so I can have a tooth to push out the left lip where I have numbness and no bottom teeth. At the moment I have a radiant smile but when my mouth is relaxed the left side droops down quite markedly. (Just saw a photo of myself not smiling!)

This process through our public health system is agonisingly slow but it's free and I'm getting the services of one of the best prosthodontists in the country.

In a few months I might be a little bit more symmetrical and better still will stop biting my lip.

There's also the prospect of some feeling and control (?) returning to the nerve dead area. Not so much tingling now but sometimes I get a violent itch in my numb chin.

Posting this as part of the post-treatment experience and to see if others have had such a long dental process.

Decay is happening but superficial at the moment. I use a Waterpic plus a heavy duty fluoride toothpaste. I like sweet things though and have become a smoothie-aholic. And I've regained all the weight I lost during treatment. I have mixed feelings about this. I guess survival should trump vanity!


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
Alpaca #188580 03-05-2015 03:07 AM
Joined: Mar 2014
Posts: 286
"OCF Down Under"
Gold Member (200+ posts)
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"OCF Down Under"
Gold Member (200+ posts)

Joined: Mar 2014
Posts: 286
Survival trumps vanity mate.

I've needed some additional dental work with my left side doing all the work, but nothing as serious as yours.


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.
Alpaca #188613 03-09-2015 01:18 AM
Joined: Nov 2009
Posts: 644
Likes: 1
Alpaca Offline OP
"OCF Down Under, Kiwi"
"Above & Beyond" Member (500+ posts)
OP Offline
"OCF Down Under, Kiwi"
"Above & Beyond" Member (500+ posts)

Joined: Nov 2009
Posts: 644
Likes: 1
Oz, do you get free dental treatment in Australia? As an oncology patient??


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.

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