| | Joined: Mar 2015 Posts: 2 Member | OP  Member
Joined: Mar 2015 Posts: 2 | I was recently diagnosed via a biopsy with oral melanoma and scheduled for surgery on 3/12. They took two samples - one was insitu and the other was pre-cancerous. Dr. used the words "curable"and early when talking with me and my wife. Had pet and ct scans and the cheif radioligist told us that he did not see any metastisis.
Still very nervous and would just like to hear from anyone else with oral melanoma and what to expect. | | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | I don't know if anyone currently on board here has had oral melanoma but "in situ", "pre-cancerous", "curable" and "early" sound promising. It's great that it has been picked up so soon. It must have been a relief when the PET and CT scan showed nothing suspicious.
How did you detect it? What sort of treatment will you have?
You will find a lot of comfort on this site. Someone will know about oral melanoma and we have all been through various types of oral cancer treatment. We will help you through:)
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | | Joined: Mar 2015 Posts: 2 Member | | OP Member
Joined: Mar 2015 Posts: 2 | It was a real high when I hear the PET/CT and CT scan came back clear.
As far as detecting it, my dentist first thought it was an amalgam tattoo on my gum where a tooth had been extracted. It grew larger and he finally sent me to an Oral Surgeon where it was biopsied on Feb 13. Between then and today its been a series of tests, pre-tests, etc all leading up to the surgery date.
As far as treatment, the doctor will not know until the surgery is done. it could be chemo and/or radiation or nothing. I am hoping for the latter
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCF. Here is some info about oral melanoma from the main OCF pages. Its important to learn about your illness so you can be a strong advocate for yourself. Best wishes with your upcoming surgery. Oral Melanoma (from main OCF pages)
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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