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Joined: Oct 2011
Posts: 27
Laz Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Oct 2011
Posts: 27
I went through 33 sessions of radiation at the end of 2011 for HPV16 related cancer on my tonsils. My radiologist recommended Caphosol which worked out very well for me.

I have a friend who is just started radiation/chemo for an HPV-16 positive Squamous Cell Carcinoma of the Nasopharynx.

I am recommending it to my friend however I want to see if others have had similar positive experiences with Caphosol (or was I just one of ht elucky ones) It is pretty expensive and I know that some insurance companies don't cover it .

Any advice (positive or negative) is welcome

BTW - I am free and clear (three year anniversary). I am one of the lucky ones as no side effects and life is treating me very well. This forum was a bright light in a rather dark space for me. I really appreciated all your help and good wishes.

Thanks - Steve

Last edited by Laz; 03-02-2015 02:59 PM.

50 yr old, male
SCC of Lymph node right side of neck - 6/30/11
Biopsy: 8/23/2011
MND Right side- 9/19/2011 - 18 nodes - 17 clear
T1N1M0 source on right tonsil tissue
HPV+
IMRT 33 sessions started 10/18/11. Finished 12/5/11
No Chemo
Joined: Mar 2014
Posts: 79
"OCF across the pond"
Supporting Member (50+ posts)
Offline
"OCF across the pond"
Supporting Member (50+ posts)

Joined: Mar 2014
Posts: 79
Hi Steve
I finished treatment in UK for tonsil cancer 14 months ago. I was offered a trial of caphosol free , which I took during treatment and for a short while afterwards , honest opinion not sure if it was any good or not . My mouth is quite well healed now so perhaps it did some long term good .
May your good health continue , love ang hugs to your friend.
Di x


Di 47 none smoker / drinker

T4 SCC left tonsil
1 Cistplatin,30 RAD finished treatment on 4/12/2013
Trismus
First MRI scan appears clear
TX
NG tube 9 weeks
acute vommiting, syringe driver 9weeks
2 month checks

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