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| | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | [quote]Some people like to "bounce" [/quote]Yeah.. Don't we all wish we could bounce like when we were youngster. I can tell you for certain, when I fall down, there ain't any bounce and I remember it for a few days too! 
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | [quote=sophie theriault]Thank you, looking at your signature I see you are dealing with what looks like many conditions/complications. Do you have posts that detail what you are facing and working on now? You have a lot of insight into radiation and how to best deal with its long term effects. What are the challenges you are dealing with now?
It's amazing the amount of guidance I am finding here. You will not find this kind of help anywhere else.
Sophie [/quote]
Hi Sophie, I am not sure I have posts that detail everything but I have posted a few things. You could take each one and use the search function. That might give some insight. I am dealing with all of them each day. I may have more but I don't go to doctors very often. They haven't been able to offer many solutions or guidance. One new thing has to do with the damage to the back of my left eye from radiation scatter. It is called vitreous detachment and causes a lot of floaters that makes seeing, especially reading, very difficult. Like many of the issues I deal with, it can be caused by aging as well. l had a doctor that was an ACE (After Cancer Experience) family practitioner that spent a lot of time explaining the toxicity of treatment accelerates aging.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Sep 2013 Posts: 105 "OCF Canuck" Senior Member (100+ posts) | | "OCF Canuck" Senior Member (100+ posts)
Joined: Sep 2013 Posts: 105 | You sure are living through so much and still full of spirit, very touching. Sophie | | |
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