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Joined: Oct 2006
Posts: 383
Platinum Member (300+ posts)
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Platinum Member (300+ posts)

Joined: Oct 2006
Posts: 383
Oz, Paul, and others make really good points. Hydration is important, every day is a crap shoot as things change around and aren't consistent after treatment for a long, long time! It's critical to rest well, stay hydrated, savor the first few bites, as saliva loss occurs taste flattens out, and keep trying new things and pushing yourself. Even prior to my last bout starting a few months ago tastes changed around a lot even after eight years, but I was grateful to eat and as Tony says above, "Still enjoying being on this side of the grass." Best to all.


SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

**** PASSED AWAY 10/8/16 ****

Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Remember that there are different taste buds for different flavors, and they are NOT spread evenly throughout the mouth. My husband's experience was that tastes came back at different times. He says that many foods still don't taste 'right'. About a year ago we started experimenting with south indian cooking that emphasizes layers of flavor and infuses the cooking oil with the spiced. In addition, since we didn't do that type of cooking, there was no 'right'. We have found that concentrating on the umami flavors for be helpful.
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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