| | Joined: Feb 2015 Posts: 2 Member | OP  Member
Joined: Feb 2015 Posts: 2 | Mid December I noticed (what I thought was) a canker sore on the roof of my mouth. When it hadn't healed in a few weeks I had my husband look at it. He stated it didn't look good and suggested I see our PCP. Dr Brown didn't like the looks of it either so sent me to an ENT. She did not think it was cancer and sent me to an Oral Surgeon. With all the hoops the insurance company put me through it is now into February. Saw the Oral surgeon and he wanted to remove and biopsy it, but needed approval from insurance. I have an appointment March 3 to have that done. But, I now see that the lesion has changed it is red instead of white and the surrounding area is also white and raised. I'm trying to stay positive and not jump to worst case scenario but it isn't easy. Glad I found this site so there are people to talk with that know what I'm feeling. Thanks for listening.
jo
| | | | | Joined: Sep 2014 Posts: 87 Likes: 2 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2014 Posts: 87 Likes: 2 | It could be many things, not necessarily cancer. Glad to hear that you have the biopsy being done though - at least that will determine if it is, or not. I know this is a very scary time, waiting for the biopsy and then waiting for your results. But try not to worry too much about it, don't dwell on it, dominating your thoughts all day long and let it stop you from sleeping. Easy enough to say and not so easy to do, but there is no benefit to yourself to allow so much worry.
I hope you get some good news soon!
Dx 2014Jan29 (42 yr old otherwise fit nonsmoker)
SCC tongue stage III T3N0M0
subtotal glossectomy, partial neck dissection, RFFF, trach, NG tube 2014Feb25 16 days in hospital
RAD 25 zaps 2014May5-2014Jun9
Back to work, paddling & hiking shortly afterwards
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | yes hopefully its nothing but better safe than sorry. If you do get a bad news diagnosis (crossing my fingers you don't) My suggestion would be a referral to a top notch ENT who works with OC. Insurance companies suck... hugs and welcome.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCF. I also would advise you to seek out an ENT who specializes in oral cancer. They would be the most knowledgeable person to help determine exactly whats going on. A biopsy is the only way to know for certain what it is. Hopefully its not cancerous. Since you have to wait for the other doc, try calling your insurance company and asking about an experienced ENT.
Good luck!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2015 Posts: 2 Member | | OP Member
Joined: Feb 2015 Posts: 2 | Going in at noon today to have it biopsied. Will report back when results come in. Appreciate the welcome and the support.
jo
| | | | | Joined: Nov 2014 Posts: 66 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2014 Posts: 66 | So frustrating that things like this are not biopsied right away. Something needs to change with our system. Let us know, jo.
HPV+ P16 positive squamous cell carcinoma
Oct 2014 found neck node lumps
Went to Oncologist (TNBC)
Ultrasound
2 CT Scans - body/head and neck
Needle & core biopsy
Pet Scan
Biopsy to find primary w/ anesthesia - failed
Second Opinion found primary & biopsied
Biopsy confirmed HPV+ P16 Squamous cell carcinoma
Radical Neck Dissection 11/22/2014
32 lymph nodes removed - 3 positive
Ported 12/29/14
Chemo and rads to start January 5, 2015
cisplatin weekly 40 mg/m2
Rads M-F for 7 weeks
| | | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | | "OCF Down Under" Gold Member (200+ posts)
Joined: Mar 2014 Posts: 286 | Hi, welcome, fingers crossed.
Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | Press to get the results if you want them early. Typically in the USA the reports are done in a couple days. An y further delay is scheduling with the doctor. You should be able to go and get the disc and attached report.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | |
| Forums23 Topics18,168 Posts196,924 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
