Ohhhhhhhhhhhhhhhhhhhhhhhhhhh! thank you!

Feel a bit dumb now (although he could have said so eh?)

Actually I probably just wasn't understanding everything. It sounds as though my consultant was one of those who was part of the original research project - he said that he started testing the protocol in 2004 and 'a few' of the people he was treating then are still around - still getting weekly Erbitux treatments, 'totally fed up with it but still here' - I know the centre where I am treated is one of the best in France and strongly involved in research, so it is perfectly likely. I shall ask him.

I am assuming that I am one of those for whom they 'are beginning to incorporate these new biological targeted agents into current standard-of-care chemotherapy' - not that I am already in palliative care as such - well, definitions eh. I am not curable so I guess all care is palliative. But I believe I'm being put on this very expensive life-long protocol because I am fairly young (54) and deemed to have a good chance of long term survival from it.

Positivity. Positivity. Positivity.

Paul - don't know if you want to talk about it here in public - I need to research you, don't I? - but what is your 'relationship' with this treatment, please? Were you deemed to be on the 'Extreme' protocol too? if I understand right, your chemo/Erbitux treatment was for a limited time, not weekly forever like is suggested for me - would you care to discuss more about your treatment background and expected future situation? Please feel free to PM me or tell me to naff off if I'm being unsubtle...

Thanks so much.

Sorry, Paul, re-read some of your past posts here and your sig., so have answered some of my own q's re you.

Don't feel bad, I would have thought the same with a name like Extreme, but I seen it before, and was familiar with it. I was never on this or any other trial. The Erbitux I had was short term to go along with radiation, and did have a recurrence 8 months later, and another treatment with a different chemo, and radiation. I'm one year out from my last treatment, and currently have no sign of cancer from a recent MRI, and PET/CT scan 8 months ago.