| | Joined: Aug 2014 Posts: 13 "OCF across the pond" Member | OP  "OCF across the pond" Member
Joined: Aug 2014 Posts: 13 | Hi all, my brother is seriously struggling to cope after just having a second (failed) operation to open his throat to allow him eat food and drink naturally rather than through a tube/peg.
He has asked about a stent or other possible options that might be available to him. Can anybody shed some light on these and apologies if this has been asked before.
Philip
Brother 51 Y/O
Had a biopsy to remove lump in throat
Recently been through Radio & Chemo
Is in recovery now and trying to deal with post issues
Has had 2 operations to allow food/drink go down throat (unsuccessful)
They say the throat is wide enough but it's the muscles are the problem with the swallowing action
Still feeding through a Peg
Has recently had another biopsy and the cancer is back
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 |
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Aug 2014 Posts: 13 "OCF across the pond" Member | | OP "OCF across the pond" Member
Joined: Aug 2014 Posts: 13 | Gloria, many thanks for that. I had read your post previously but I was a little disheartened when I read of there only having been 1 done in the world and I'm assuming it happened in Canada? We are in Ireland and I doubt that procedure has reached here yet (I am open to correction).
Brother 51 Y/O
Had a biopsy to remove lump in throat
Recently been through Radio & Chemo
Is in recovery now and trying to deal with post issues
Has had 2 operations to allow food/drink go down throat (unsuccessful)
They say the throat is wide enough but it's the muscles are the problem with the swallowing action
Still feeding through a Peg
Has recently had another biopsy and the cancer is back
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Your brother's doctor could do a consultation with our doctor and get the details. If you think that is possible, send me a private message and I will send you our doctor's contact information.
Last edited by gmcraft; 01-21-2015 08:35 AM.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | One more thing, our doctor will be presenting the procedure at an endoscopy conference in Europe. So, it is not like he won't tell people about it.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Aug 2014 Posts: 13 "OCF across the pond" Member | | OP "OCF across the pond" Member
Joined: Aug 2014 Posts: 13 | Gloria, once again, I really appreciate your replies and offer of help. I will print this is out and go through it with my brother. He has a meeting with his doctor Thursday 29th January to get full results and discuss any possible options from here on in. He has fought a great fight over the last year but is now struggling and will not accept not being able to eat & drink as normal again so we are getting worried at this point. Thanks again.
Brother 51 Y/O
Had a biopsy to remove lump in throat
Recently been through Radio & Chemo
Is in recovery now and trying to deal with post issues
Has had 2 operations to allow food/drink go down throat (unsuccessful)
They say the throat is wide enough but it's the muscles are the problem with the swallowing action
Still feeding through a Peg
Has recently had another biopsy and the cancer is back
| | | | | Joined: Aug 2014 Posts: 13 "OCF across the pond" Member | | OP "OCF across the pond" Member
Joined: Aug 2014 Posts: 13 | Can anyone throw any light on the use of a stent when 2 operations have failed to open the esophagus?
Brother 51 Y/O
Had a biopsy to remove lump in throat
Recently been through Radio & Chemo
Is in recovery now and trying to deal with post issues
Has had 2 operations to allow food/drink go down throat (unsuccessful)
They say the throat is wide enough but it's the muscles are the problem with the swallowing action
Still feeding through a Peg
Has recently had another biopsy and the cancer is back
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | The stent is inserted into the esophagus to keep it open until the tissues have healed. To do that, there has to be an opening in the esophagus.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Aug 2014 Posts: 13 "OCF across the pond" Member | | OP "OCF across the pond" Member
Joined: Aug 2014 Posts: 13 |
Brother 51 Y/O
Had a biopsy to remove lump in throat
Recently been through Radio & Chemo
Is in recovery now and trying to deal with post issues
Has had 2 operations to allow food/drink go down throat (unsuccessful)
They say the throat is wide enough but it's the muscles are the problem with the swallowing action
Still feeding through a Peg
Has recently had another biopsy and the cancer is back
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