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Joined: Nov 2014
Posts: 73
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Nov 2014
Posts: 73
Larry's Dr's have decided to curtail his treatment as it has been so hard on him. His radiation Dr said the Rads and chemo are still in his body working.Today is last rad.

The GI replaced his PEG 1/7/15 and this tueb was smaller. He has developed some Granulatin Tissue, his GI told him it's very common, nothing to worry about.

We ended up in ER and then hospital for 2 days due to the tube being pulled back and forth. His formula comes out around the larger stoma.

Larry is now taking Protonics though his PEG and he has a home suction machine. The first one he got was so loud it vibrated right off the table and broke. But the company replaced it with a larger quieter one with suction cup bottom. This has helped him with his phlegm.

So hopefully he they have gotten it all and he will soon be cancer free. He started this journey 11/4/14. Hopefully we can see the end of tunnel.

Last edited by larry6905; 01-23-2015 07:10 AM.

T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016
Joined: Nov 2014
Posts: 66
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Nov 2014
Posts: 66
I hope he's done by the time you see this and on the road to recovery.

Vibrated right off the table? Geez. I'm glad they replaced with a better model, it sounds like Larry needs it for the phlegm.


HPV+ P16 positive squamous cell carcinoma

Oct 2014 found neck node lumps
Went to Oncologist (TNBC)
Ultrasound
2 CT Scans - body/head and neck
Needle & core biopsy
Pet Scan
Biopsy to find primary w/ anesthesia - failed
Second Opinion found primary & biopsied
Biopsy confirmed HPV+ P16 Squamous cell carcinoma
Radical Neck Dissection 11/22/2014
32 lymph nodes removed - 3 positive
Ported 12/29/14
Chemo and rads to start January 5, 2015
cisplatin weekly 40 mg/m2
Rads M-F for 7 weeks

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