| | Joined: Jan 2015 Posts: 3 Member | OP  Member
Joined: Jan 2015 Posts: 3 | Hello everyone. My question is about the removal process for a PEG tube. It was inserted in July 2014 and they'll be taking it out soon. If any of you have been through this- is there pain and discomfort during the procedure? Or after? I've spent many months being gentle and delicate with that area of my stomach, so the idea of someone pulling or pushing that area makes me nervous. Also did any of you need to take time off from work after the removal or did you feel well enough to move around. Since I have used up almost all of my vacation time recovering from treatment, I don't want to use another day off unless I really have to. Any advice? | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | If you have a regular PEG tube then its a 5 second out patient procedure. You will experience pain for about a minute and then its over. After I got over the shock of the pain, I immediately felt relief. It was amazing to be able to move around properly and stand up straight for a change. You may need to relax for a couple days just avoiding alot of physical activity, especially lifting anything over 20 pounds. Unless you have a very strenuous, physical type of job then you shouldnt need to take time off besides for the appointment.
Congrats on getting the PEG removed! Its quite a hurdle to relearn how to eat enough after treatment.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Christine has it right... mine was removed shortly after treatment - it was nothing but then I sense I have a high pain tolerance. hugs and YAY!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: May 2014 Posts: 22 Member | | Member
Joined: May 2014 Posts: 22 | I was in and out and back to work in about a hour and that was because the Doctor was late coming back to the office. It was quick and not a problem at all. No worries. you will be fine!!!!
| | | | | Joined: Jun 2014 Posts: 86 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2014 Posts: 86 | My brother was so scared to have his removed. He got it removed last week and he said it didn't hurt at all!
22 YO Brother Dx 6/17/14 w. SCC R Lateral tongue
CT scan clear LN 6/20/14
HPV-, non-smoker
R tongue, right hemiglossectomy Surgery 6/24/14
(Not reoccurrence but went to NCCC instead
R neck dissection, tracheostomy, radial free flap, R tongue dissection surg 8/11/14
PT1N2B.3 positive lymph nodes out of 13
Extranodal extension present
9-15-14 IMRT (35x) & Cisplatin (2x) begun
10-21-14 peg in. 10-31-14 1 round of carboplatin
11-4-14 IMRT rx comp
3-27-15 Recurrent tumor in lymph node, L neck diss.
10-29-15 brother passed away, 23 yrs old
| | | | | Joined: Nov 2013 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2013 Posts: 104 | When I had mine removed the nurse was dressed up like I had Ebola, she had a full spread of tools and instruments and what not. To be frank I was scared shitless by all the prep.
Then she said she was gonna count to 3 and pull. She pulled on two, put a price of gauze over it and I was done.
Don't think I felt a thing.
Brian
Stage IV TxN2aM0 HPV+ SCC 38 y.o. male
9/20/13 Sentinel Node Found
12/5/13 Start of 72Gy and 5 bags of Cisplatin
1/21/14 Treatment Ends
1/25/15 1 Yr clear
| | | | | Joined: Jan 2015 Posts: 3 Member | | OP Member
Joined: Jan 2015 Posts: 3 | I wanna thank all of you for responding. You are all right. All I felt was a few moments of stinging and that's it. I can be such a baby about these things. Thank you. | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Having the feeding tube removed is a scary event. Getting thru everything you already have, you are not a baby! PS... Sunshine, Ive sent you a private message (PM). Please add a signature so we are able to help you easier. Directions are detailed in the link on the PM. Thanks
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | Agree with every post here. We've all been through a lot worse than this few seconds of discomfort. Best of luck, it goes quick..... And CONGRATULATIONS on a milestone towards normal life and freedom!
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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