| | Joined: Nov 2008 Posts: 35 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Nov 2008 Posts: 35 | My mom passed away on December 15th. It's very sad that on Sep 15th we were informed that she had 3-24 months. She became really weak early November and died at exactly three months. I thought we would have at last a year with her. Her one round of chemo only made things worse.
She was initially diagnosed in August 2008 and had a successful Mandibulectomy in September 2008. She went on to live a normal life for 6 years and I was so thankful for this.
In March of this year she had recurrence. Our doctor indicated he had never seen a case like this where after five plus years he was looking at my mom as a brand new stage IV patient.
She was 54.
CG to mother. Diagnosed with SCC August 08. Surgery Sep 08 to remove right mandible and replace it with fibula from left leg. Also neck dissection with one pos. node. Rad/Chemo with cisplatin completed Nov 30, 2008.
Passed away Dec 15, 2014
| | | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2014 Posts: 236 | Nick V
This is sad news . I'm so sorry to read that your mother has passed.
Prayers to you and your family.
Heidi
Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015
| | | | | Joined: Mar 2014 Posts: 25 Likes: 1 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Mar 2014 Posts: 25 Likes: 1 | Nick,
I am so sorry to hear that you lost your mother. Wishing you peace and healing during this incredibly hard time.
Randi
Spouse/caregiver to my husband:
Age 48 @ diagnosis
HPV+ SCC Stage IV diagnosed 1/14
Primary site unknown
Met to neck lymph node; 2" tumor resected 2/13/14
Completed 7 Cisplatin weekly sessions and 35 daily IMRT sessions 5/6/14
PET scan clear 11/14
CT clear 10/15
CT clear 10/16
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | Nick,
I'm so sorry about your mother. I lost my mother in 2012 and know how hard it is especially around the holidays. Cherish the memories. Hugs and prayers to you and your family.
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | Nick,
I am sorry to hear about the loss of your mother.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Nick, Im very sorry to read about the loss of your mother. In time, I hope the memories of happier, healthier times will bring you comfort.
May she rest in peace.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Nick, I'm sorry for your loss. it is hard to lose a parent at any time, but probably more so at this time of the year. My condolences to you and your family.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Apr 2014 Posts: 18 Member | | Member
Joined: Apr 2014 Posts: 18 | I am so sorry to hear about your loss. My father just died 12/25. Hugs.
daughter of George:
stage IV squamous cell
diagnosed 12/18/13
double bypass 4/25/14
mandiblectomy 6/13/14
released from hospital 6/25/14 to return 6/27/14
radiation to start 8/25/14; only had one treatment
currently in a nursing home
Passed away Dec 25, 2014
| | | | | Joined: Nov 2008 Posts: 35 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Nov 2008 Posts: 35 | Thanks everyone!
It is very difficult. My parents migrated from India when I was only 8 months old. They didn't have much when they came here. My mom worked 80 hours a week so that our family could make it. She sacrificed everything for my sisters and I.
CG to mother. Diagnosed with SCC August 08. Surgery Sep 08 to remove right mandible and replace it with fibula from left leg. Also neck dissection with one pos. node. Rad/Chemo with cisplatin completed Nov 30, 2008.
Passed away Dec 15, 2014
| | | | | Joined: Nov 2008 Posts: 35 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Nov 2008 Posts: 35 | Keleigh - thanks! I am familiar with the mandiblectomy as mom had that in 2008 and my dad previously had double bypass. Those are major operations and I wish you and your family the best in the New Year!
Last edited by Nick V; 12-30-2014 12:30 PM.
CG to mother. Diagnosed with SCC August 08. Surgery Sep 08 to remove right mandible and replace it with fibula from left leg. Also neck dissection with one pos. node. Rad/Chemo with cisplatin completed Nov 30, 2008.
Passed away Dec 15, 2014
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