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Joined: Nov 2013
Posts: 9
"OCF Canuck"
Member
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"OCF Canuck"
Member

Joined: Nov 2013
Posts: 9
Hello all,
Hernia diagnosis after months of very poor digestion and cramping.
Surgery planned via family doctor
Rad onc again not agreeing that this was a result of chemo-I give up with him.
I received good mdi news but still not clear news.
My upper neck lymph node has reduced from 1.6 cm to 1.3
They would like to see it under 1, though they initially said they would like to see it under 1.5. They aren't suggesting anything other than lets continue to wait and see.
I am10 months out of treatment.
Though everything else is clear-base of tongue - I can't help but be concerned of course.
3 months another mri is ordered.Though i may be clear here I can't help but wonder if it will still keep shrinking .If not it will require surgery. Any feedback here or experience would be helpful.
Rad onc not very thorough in explaining where I am- AM i worrying too much here ?


base of tongue scc 11/02/13
stage 4 hpv16
necrotic lymph-left
CYSPLATIN 2x- unable to tolerate 3rd
RAD35=imrt completed feb 28-2014
70gy
peg -removed -april 2014
bot cancer -not visually evident
lymph node still slightly over sized 1.3 cm no surgery planned
wait for future scan results march2015
terrible digestion for months
inguinal hernia a result?
no appetite most days-
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
I asked my radiation oncologist once how long does radiation keeps working being I had read 6 weeks, just as long as treatment lasted, he said in theory, but there is no way to prove that, but at least several weeks. Maybe they can do an FNAB to see if it is necrotic, cancerous or not. I had that done or a lymph node, and showed dead or dying cancer cells, but further testing showed it to be cancerous. Some have mixed reviews with FNAB, but all mine, around 10, were accurate, all done by a pathologist under ultrasound guidance. After that a PET scan was usually done if positive, which highlights uptake activity by the nuclear glucose injection to see of any other possible cancerous areas, then a neck dissection.

Good luck.



10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
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"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,024
Kris had a residual lymph node after his rads and chemo.
It lit up on his 3 month post treatment PET, so it was removed in a Modified neck dissection. Pathology showed this to just be a necrotic node with dead SCC cells.
I would be reassured that this Lymph node is declining in size.
Glad your team will continue to keep an eye on it and you.
Enjoy the Festive Season.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!

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