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#187218 12-16-2014 12:13 AM
Joined: Apr 2014
Posts: 236
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Joined: Apr 2014
Posts: 236
So today we received the results of the CT Scan taken last week. It seems the Cisplatin didn't even touch the cancer. The cancer Mass has spread a little bigger. The is devastating news.

The Oncologist has offered Erbitux Treatment next but we are so confused on what decision to make.
Should we just stop here and get another opinion ?

It seems the team of Oncologist that are treating my mom are not having much luck with any positive results from RAD or Cisplatin.

Why is my mothers cancer not responding to treatment?
Is it not the correct treatment for her condition ?

My poor mother is crying her eyes out tonight. I have assured her that we will not stop here. There has to be a treatment that will help her.

August 20 2014 - Ct Scan after 35 Radiation Treatments - 25mm Lobulated recurrence left mandible/floor of mouth carcinoma.

December 10 2014 - There is a regular thick rim 45x29x28mm soft tissue mass (30mm on comparison exam) at sight of left body and ramus of mandible resection into left parapharyngeal space and contrast enhancement contiguous with the internal carotid artery.

Please anyone can you give me some advice on what steps we should take next. Should we just try the Erbitux or get all the medical records together and get another opinion.

I feel we don't have much time to make this decision. We have to act fast with the best move.

Thank you Anyone for Advice
Heidi


Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


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Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

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Im very sorry the chemo didnt work! I wish there were other, better options I could tell you about but there is only surgery and radiation with or without chemo that will eliminate the cancer. Chemo alone is for pallitive care.

Its something you and your mother must decide if you want to continue to seek out another opinion. Whatever your decision is, we are in your corner.

Best wishes!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Nov 2013
Posts: 29
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Joined: Nov 2013
Posts: 29
Heidi, I'm sorry to know chemo had no effect on your mom.

I usually ask doctors 'if I was your sister, what would you tell me to do?'
It makes it more personal and encourage them to think from a different angle.

My father in law had 1/2 his jaw removed followed by radiation when he was in his mid 70s, and he didn't have any more problems.

I pray you find the right doctors, the right words, the right treatment, and ultimately the right choice.

Blessings,





Patty / husband Dx with Stage 1 SCC
November '12, BOT ulcer
June '13, first biopsy-negative.
October '13, second biopsy-positive
November '13, second opinion at CCC, T1
December '13, partial glossectomy.
September '14, biopsy on lymph nodes, 1 tested positive.
October '14, right side neck dissection. 14 nods out, with only one affected.
November '14, T1N1M0 radiation in the recommended by oncologist
December '14, radiation treatment

Joined: Dec 2003
Posts: 2,606
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
I can't answer your questions other than to say yes you should seek a second opinion at a Comprehensive Cancer Center.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023

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