| Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I bet it is. Some of the initial shock will begin to wear off and you will have some good information after the biopsy. Try to keep calm and keep things moving.
You might want to add your location in your profile. You may have survivors in your area.
Best wishes for the best possible news on your biopsy.
Last edited by Uptown; 12-07-2014 07:52 AM.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Dec 2014 Posts: 12 Member | OP Member Joined: Dec 2014 Posts: 12 | Ok thank you. Yes I think I am still in shock. It was totally unexpected. I actually thought they would just order blood works to check my b12 levels. Last thing I expected was to be told that I need a biopsy. I will keep you updated. Just hope my tongue isn't too sore after tomorrow. X | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | Good luck tomorrow. It's late now in the UK so hopefully you get good rest. There is nothing positive that comes from worry at this point. Lack of sleep and anxiety surely are not good.
Depending on the type of biopsy, you should be able to get about your normal business in a day or two. If you must talk alot as part of your job, then there may be a few days of speech issues and some pain. Make sure you get some pain meds straight away. You can always withhold them if you feel ok.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Mar 2014 Posts: 79 "OCF across the pond" Supporting Member (50+ posts) | "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2014 Posts: 79 | Hi there , I'm Di for Marple Cheshire ( not far from Manchester) I finished my treatment for stage 4 tonsil cancer just 12 months ago. I'm doing really well but I won't kid you its a long difficult road you have to travel should it turn out to be bad news . I was treated at The Christie in Manchester cancer specialist hospital and I cannot praise them highly enough . Dr Sykes was my oncologist he's very experienced. Let us know the results of your biopsy I pray it's not cancer but if it is your in the right place you will be helped and supported every step of the way. Stay focused thinking of you Di x
Di 47 none smoker / drinker
T4 SCC left tonsil 1 Cistplatin,30 RAD finished treatment on 4/12/2013 Trismus First MRI scan appears clear TX NG tube 9 weeks acute vommiting, syringe driver 9weeks 2 month checks | | | | Joined: Dec 2014 Posts: 12 Member | OP Member Joined: Dec 2014 Posts: 12 | Hi I'm in wrexham north wales. Not far from Chester. Yes I think most people with cancer in my area are treated in christies. I've had the biopsy now. Just got to wait for the results. They have said it will take three weeks. Probably because it is so close to Christmas. Got to go back on the 2nd of January for the results. I have a feeling it will be the longest three weeks of my life. I think they have to send the sample off. Today my mouth is really sore. Got four stitches. But they are very fine stitches. I would say the incision is about two cm by two cm. the dr who took the sample said that she wasn't able to cut the whole thing out but had to shave a piece off. She did say that monomer from me doing acrylic nails may have been a contributing factor. Just got to wait now for the results. X | | | | Joined: Mar 2014 Posts: 79 "OCF across the pond" Supporting Member (50+ posts) | "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2014 Posts: 79 | Hi again, yes the waiting is grim, 3 weeks seems along time to me , I had my tonsil removed a CT scan and multiple biopsies taken and had the results in 13 days I think mine was a for gone conclusion. Had severe trismus and ear pain and 4cm tumour sitting on the left tonsil but as they say around here it's not cancer until the biopsy says it is. Also had a polyp removed and biopsied a couple of months ago which thankfully was okay and that took 8 days , I'm thinking once your in the system things move quicker maybe but I would push and ask if had been marked urgent as that too can make a difference. My daughter in law is a beautician and nail technician so I find what the Dr said to you disturbing. Mike my other half and I are going to a head and neck support group tonight we find it really helpful they don't have one at The Christie unbelievably but a hospital quite local to us does so we're off there tonight it's the Christmas party met some really great people . Try hard not to let this dominate your every waking hour ...... I know not easy. Love and hugs Di
Di 47 none smoker / drinker
T4 SCC left tonsil 1 Cistplatin,30 RAD finished treatment on 4/12/2013 Trismus First MRI scan appears clear TX NG tube 9 weeks acute vommiting, syringe driver 9weeks 2 month checks | | | | Joined: Dec 2014 Posts: 12 Member | OP Member Joined: Dec 2014 Posts: 12 | Yes three weeks does seam like a long time. But I guess that is probably because of the holidays. All I can do now is wait and just hope for the best, would have helped to know sooner as this will be hanging over my head all through Christmas. Aww bless you sounds like you have been through the mill. It must have been so hard. I hope you enjoy your support group. Sometimes it does help a lot to just talk about it. X x x | | | | Joined: Mar 2014 Posts: 79 "OCF across the pond" Supporting Member (50+ posts) | "OCF across the pond" Supporting Member (50+ posts) Joined: Mar 2014 Posts: 79 | Hi there , Just checking your okay ? The support group was great thanks, sadly a couple of new members joined last night they where just starting out on their journey and asking loads of questions which is good but always sadden 's me that another person has to get through this awful treatment. Hoping sincerely that you don't have too but we're here for you should you need us. I've been on a training course today from work come home shattered still struggling from fatigue and I'm very anaemic and have been since my treatment plus the radiotherapy has left me with an under active thyroid, so it's pyjamas and bed for me now! Lol xxx😀
Di 47 none smoker / drinker
T4 SCC left tonsil 1 Cistplatin,30 RAD finished treatment on 4/12/2013 Trismus First MRI scan appears clear TX NG tube 9 weeks acute vommiting, syringe driver 9weeks 2 month checks | | | | Joined: Dec 2014 Posts: 12 Member | OP Member Joined: Dec 2014 Posts: 12 | I'm ok thanks but I have to admit I am quite scared. But I guess that's all part and parcel of it all. Glad you had a good night at your group. To be honest I had never even heard of oral cancer before this. So it is quite a shock to my system. Especially as no one in my family has ever suffered with cancer. Well my dad had a melanoma but he was lucky because it was on his nose and had no where to go. So he just needed some surgery and has been fine since. That was nine tears ago. I hope you feel better soon. It's hard your feeling so unwell all the time. X | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | Waiting is such a drag but so common in the cancer treatment game. Rush for test, wait for results, rush for treatment, wait for results.
Do these results typically take so long to be completed? That seems like a very long time to turnaround a test. Certainly does not help with getting on with it.
Good luck
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | |
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