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Joined: Nov 2013
Posts: 14
Budl Offline OP
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Member

Joined: Nov 2013
Posts: 14
It has been a while since I posted. I had a small piece of my tongue removed. Later biopsy showed lymph node involved.
Neck dissection accomplished and node removed. Biopsy of surrounding nodes was negative but radiologist recommended "just in case" radiology treatments. All of my teeth were removed 2 days ago (huge ego buster for me) and feeding tube to be installed tomorrow. CT scan scheduled for Monday and radiology treatments to commence sometime after that. I'm not looking forward to the next couple of months but will do what needs to be done. I am blessed with a loving saint of a wife who is walking this walk with me without complaint. I think I am most concerned about falling in to "situational depression" and leaning too hard on her. I am already self conscious about my "tooflesness" and ability to speak clearly but I want to remain as active as possible during the duration of this
treatment period. Any tips from those who have been here would be appreciated.

Thanks
Bud


Male, age 65, smoker, former drinker. Retired corp. pilot. diagnosed with stage I squamous cell in the lower tongue. Fairly active. I don't "exercise" exercise but work in the lawn and garden and work on my hot rod cars.
Joined: Apr 2014
Posts: 236
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: Apr 2014
Posts: 236
Hi Budi

Sounds like the cancer was caught in the early stages which is great. Do as the doctor recommended take some Radiation treatment. Its also a good idea that your getting the feeding tube. Between having your teeth pulled and the treatments you may have some pain and a hard time eating.

Its wonderful that you have such good loving wife to stand by your side along the way. It helps to have all the support you can get.

Good luck with your treatments.
Heidi


Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
I hear you about the teeth, Bud. I had all mine extracted 3 weeks ago, but am post treatment. I'm surprised they would start treatment so soon after the extractions. The usual wait time is 3 weeks, although some say 2 werks is sufficient, depending on healing, and some as short as 7 days, if it's needed, but a course of antibiotics may be given then, and healing should be done by the time radiation effects, 2 weeks, begin to occurr. This is not only to prevent infection during treatment, escecially with chemo, but ORN, Osteoradionecrosis later on.

Glad you have a caretaker, and shouldn't worry about being a burden. Take one day at a time, and do what you can. Everyone is different. It also depends on the extent of radiation, dosage, locations, if having chemo concurrently, and other factors.

Good luck


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs







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