| | Joined: Oct 2014 Posts: 4 Member | OP  Member
Joined: Oct 2014 Posts: 4 | ORN untreated prognosis? Hubby is 10 post OC, 5 yrs ago had ORN diagnosed, underwent 30 HBO dives. That slowed the disease down, but he has refused surgery to remove the dead bone. Now and then, he removes a tiny shard of bone himself, so obviously the problem is still growing. Lots of pain, wondering what the expected progression is: I believe it will spread to his cervical spine and travel from there. Does anyone else know how the effects of non treatment will happen. I'm sure the final outcome won't be pretty, but he refuses further treatment and I would like to know what to expect.
The Warrior's Wife
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCF. Im very sorry to read about your husband refusing treatment for ORN. The bone will continue to deteriorate causing significant discomfort and pain. The earlier ORN is treated the easier it is to correct. A surgery to remove the dead bone is a big surgery for most. But it is also very individualized and may not be too involved if caught early. Maybe if your husband understood that many others have undergone the surgery and have recovered going on to live decent lives.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Oct 2014 Posts: 4 Member | | OP Member
Joined: Oct 2014 Posts: 4 | Well, since I can't change his mind, I am going to get myself some help ! I need to be stronger, more supportive of his decisions, and prepare to carry on .
The Warrior's Wife
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Being a caregiver is a very difficult job! Im glad you are working on taking care of yourself. Its common for caregivers to attend counseling and take anxiety meds to help deal with the horrors of fighting such a horrific disease. I cant imagine how difficult it is to watch someone you love suffer. Im sure it must make you feel helpless which is not a good feeling. We are here not just for the OC patient, we are here to help caregivers too.
Wishing you all the very best with everything.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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