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| | Joined: Jul 2014 Posts: 5 Member | OP  Member
Joined: Jul 2014 Posts: 5 | My husband is 4 weeks post rad/chemo. He developed extreme pain at one of his ulcer sites and started having ear pain. Saw docs yesterday and they think his mouth ulcer is infected and that's what is causing the pain. They prescribed an antibiotic, but also scheduled an MRI for Friday morning. Has anyone here every had Rad (36) and Chemo (CarboTax) NOT work for HPV + SCC oropharangeal cancer?
husband diagnosed with SCC, HPV 16+ Stage 2/3 in July 2014(tonsil, BOT, some soft palette)
No nodal involvement
Completed 36 Rad and 5 Chemo (CarboTax), Oct. 2014
Underlying Leukemia (Chronic Lymphocytic Leukemia), Diagnosed Feb. 2013
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Unfortunately yes. There is a subgroup of HPV positive patients that do not respond well to chemo and radiation. As yet, they do not test for this. My Husbands BOT tumour was fund again, 10 months post rads and chemo. He went on to have salvage surgery of total Glossectomy and Total Laryngectomy. That was in March 2012. He is alive and well. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | The pain could be from an inflammation pressing on a nerve. At only 4 weeks post rads he still has a very long road ahead with his recovery. Hopefully its nothing serious and just part of the whole treatment/recovery process.
Sounds like the doc is right on top of things which is a very good thing! Better to do a scan and rule out anything serious.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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