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#186813 11-23-2014 07:23 AM
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I've had treatment for a with both rad and chemo for bot. The worse pain is in my ear. It is constant and intense. A dr said it's pressure from tumor, though he did not look at it.
I suspect this is an ear infection going on at same time of treatment. I also have thick yellow Phlem which makes me think this.
The ear pain is more intense than any other resulting pain from treatment.
Has anyone else have this, am I alone. Any suggestions for relief.
I am still able to swallow, I haven't had to use my peg yet. Although my throat is very sore the pain doesn't compare to the ear pain.


T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016
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If you are in pain, ask for pain meds. It is detrimental to a patient to hurt. If you already have pain meds and they arent working then talk to your doc to up the strength or give you something that will manage your pain.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 236
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Larry

Call your doctor to up the pain meds. It could be an infection but my guess its probably from the cancer. My mother suffers with sever pain in her ear also and its from the cancer. I had the call her doctor because she was taking Norco but it wasn't strong enough. Her doctor ordered Oxycotin along with the Norco. Also you can ask for the pain patch that may help you also.

As for the flem I know that is horrible also. It's also bad with my mom to. You can rinse your mouth with baking soda & salt or there is a prescription called Magic Mouth Wash. Call your doctor to order that if you don't have it yet. Nothing really makes it go away but you get some relief.

Get well soon and stay positive
Heidi

Last edited by sweetpe1; 11-23-2014 02:35 PM.

Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


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Posts: 1,024
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The main presenting symptom for Kris was the extreme ear pain associated with his BOT cancer. So I think I agree with your doc that it is pressure from the tumour. If you had an ear infection I would expect you to have a temperature and a purulent/pussy discharge from the ear canal.
Listen to Christine. Get some pain meds from your doc.
Hope you feel relief soon.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Joined: Nov 2014
Posts: 73
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Posts: 73
Where is the best place to place patch?


T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016
Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
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Hi Larry, anyplace on the upper body will be ok. Try the top third of your arms, under the collarbones/top of the chest, or on your back at the top . Rotating the sites whenever you change the patch is also a good idea.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Joined: Jun 2007
Posts: 10,507
Likes: 6
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Always put the patch on a new spot whenever you put a new one on. I would alternate between upper arms, upper legs and the sides of my stomach.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jul 2014
Posts: 5
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Joined: Jul 2014
Posts: 5
Hi Larry,

By husband also had ear pain with tonsil/bot HPV+ SCC at time of dignosis. Ear pain went away when treatment started (RAD and chemo). He's post treatment about a month and ear pain is back, along with intense jabbing pain at site of mouth ulcer. Doc scoped him and thinks the ulcer is infected (causing swelling and thus ear pain). Has taken antiboitics for 1 day and already the ear pain has gone away. Explore the possibility of infection.....


husband diagnosed with SCC, HPV 16+ Stage 2/3 in July 2014(tonsil, BOT, some soft palette)

No nodal involvement

Completed 36 Rad and 5 Chemo (CarboTax), Oct. 2014

Underlying Leukemia (Chronic Lymphocytic Leukemia), Diagnosed Feb. 2013
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I had ear pain also from a cancerous lymph node, level ll, before starting radiation treatment, which was eventually controlled by the pain meds, and few weeks of radiation. Anytime there is pain or continued pain, doctors like to know. I also liked to put the Fetynal patch on my upper chest or shoulder area, with the date marked on it, so I could see it better, not double dose, know when to replace it. Follow prescribing precautions, discarding. These can easily be picked up by pets, or even stepped on after discarding if not careful.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs







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