OP "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) Joined: Nov 2009 Posts: 644 Likes: 1 | I'm having a few problems in my face now, eight months after surgery and six after RT. I'll contact one of the nurses on Monday but put some feelers out here first.
The pain is mainly felt in my ear but the jaw in front of it is tender to touch and I get some relief if I move my jaw around a bit. It's deep, sharp pain that will barely respond to strong painkillers but will go away completely if I do some vigorous gardening or housework. It seems to come on after I sit on a sofa watching TV or looking at my laptop. It also causes me a lot of pain if I dare try to read in bed. I assume it is to do with the alignment of my jaw when I'm in certain positions but it's hard not being able to sit or lounge around anymore.
1996, ovarian cancer surgery + cisplatin and taxol. September, 2007, SCC of left lateral tongue. Excision. October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT. February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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