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#186620 11-15-2014 04:26 AM
Joined: Nov 2009
Posts: 644
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Alpaca Offline OP
"OCF Down Under, Kiwi"
"Above & Beyond" Member (500+ posts)
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"OCF Down Under, Kiwi"
"Above & Beyond" Member (500+ posts)

Joined: Nov 2009
Posts: 644
Likes: 1
I'm having a few problems in my face now, eight months after surgery and six after RT. I'll contact one of the nurses on Monday but put some feelers out here first.

The pain is mainly felt in my ear but the jaw in front of it is tender to touch and I get some relief if I move my jaw around a bit. It's deep, sharp pain that will barely respond to strong painkillers but will go away completely if I do some vigorous gardening or housework. It seems to come on after I sit on a sofa watching TV or looking at my laptop. It also causes me a lot of pain if I dare try to read in bed. I assume it is to do with the alignment of my jaw when I'm in certain positions but it's hard not being able to sit or lounge around anymore.


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
Alpaca #186627 11-15-2014 07:40 AM
Joined: Apr 2014
Posts: 236
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: Apr 2014
Posts: 236
Alpaca

Same thing with my mother. As long as she is moving around the pain is not as bad . For some reason when my mom sits in her recliner or rest in her bed some swelling sets in and that's when the pain gets worst. The doctor said it could be lymphedema. There are massages to the face that seem to help the fluid move and it relieves some of the pain.

Maybe you should request a CT or MRI scan to see what going on to be sure.

Good Luck
Heidi

Last edited by sweetpe1; 11-15-2014 01:15 PM.

Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015



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