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Joined: Apr 2014
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Gold Member (200+ posts)

Joined: Apr 2014
Posts: 236
I noticed my moms incision after her "second surgery" it was healing kind of lumpy. My mom herself thought it looked ugly. The scar from her first surgery wasn't as bad. So I didn't want my mom to be anymore depressed with her looks than she already is. As I read hear about the Manuka Honey I went out and bought some. My mom is so happy . The lumps are gone and its smooth and has almost blended in with her skin. I cant wait for the Surgeon to see her scar on her next visit. Its Amazing .

Last edited by sweetpe1; 11-16-2014 07:58 PM.

Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
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Joined: Dec 2010
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It's amazing too inside her mouth - I know she's probably raw and it burns like a B^tch but I would put a teaspoon in my mouth let it melt swish for 1.5 minutes and swallow. It held off most of the bad side effects until the last three days of treatment when I finally broke down and had a pain med (I would get mouth sores and blisters but they wouldn't pop, so it was less painful.) I swear I used it from week three on. I stopped swishing probably the last week of treatment because it became crazy painful - then a week after treatment finished I thought I had a bit of thrush so I told my rads guy. He said the magic mouthwash will help it has nystatin in it... I had been using only that so I knew it wasn't helping so I started back on the manuka and in two days it was gone. after you swallow it numbs you. It's antibiotic, antibacterial, anti inflammatory. Love it. Plus it doesn't cause cavities becaus it is anti bacterial.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Patient Advocate (old timer, 2000 posts)
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Be careful of fraudulent Manuka Honey that's been circulating the past few years. Happens to lots of products once they become popular. Here is one article, but not surely the only one. Gives you some identifiable marks to look or on the legitimate product.

http://barktime.wordpress.com/2013/09/02/manuka-honey-how-to-buy-a-real-deal-and-not-some-snake-oil/


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Dec 2003
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Patient Advocate (old timer, 2000 posts)
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Good article, Paul. There is no mention of MGO ratings of manuka honey. Like all good standards, there has to be another one. Here is some industry knowledge (propaganda).

http://nzmanukanatural.com/blog/difference-between-umf-active-mgo/



SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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