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| | Joined: Oct 2014 Posts: 7 Member | OP  Member
Joined: Oct 2014 Posts: 7 | I am 6 months off of rads. My tongue has always tingled where the cancer and surgery was. I was told that this is the nerves trying to regenerate. This last week, my tongue is now on fire on the cancer side. It is sore again like I just finished radiation. Is this normal? Should I be concerned?
Stacey
SCC Stage 3 Left Lateral Tongue and lymph nodes December 2013 -HPV (no risk factors)
37 years old at diagnosis
12/2013 Partial Tongue Gloss by local ENT(she said clear margins)
01/2014 2nd Partial Tongue Gloss and left Neck dissection with more disease found by doc at MD A
04/2014 finished 30 Rad Txs
04/2014 Hospitalized for radiation side effect. PICC line for fluids and TPN feedings
06/2014 PICC Line removed
09/2014 NED
| | | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2014 Posts: 236 | Stabritton
My mother uses a prescription of Magic Mouth Wash it seems to give her some relief. she also is constantly spraying the inside of her mouth with Biotene Dry Mouth spray it seems to numb and moisten the inside of her mouth. It helps a lot for her.
But I would certainly contact your RO and report this increased pain. Even though the RAD side effects can last a long time its best to have it checked out.
Good Luck
Heidi
Last edited by sweetpe1; 10-25-2014 10:04 PM.
Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | I suggest going back to get checked out. It cant hurt, and this is a change so you should see your doc. Its always better to err on the side of caution. Gabapention is a prescription medication that works with nerve pain which it sounds like you are going thru. Nerve pain can hurt something fierce!
Sweetpe, Biotene has changed their formulas so what is on the shelves right now may not work as effectively as it had in the past.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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