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| Joined: Sep 2014 Posts: 2 Member | OP Member Joined: Sep 2014 Posts: 2 | I finished radiation at the end of August and my face is still super swollen...It's all concentrated in my cheeks and under the chin. How long does this last? Also, almost everything burns to swallow. Just in the very upper part of my throat. I'm sure its still just a bit raw and swollen as well, but any clue as to when I can eat tomato products again?
- 3cm x 4cm tumor on right side of tongue 5/14: Surgery - Lymph nodes removed from both sides of neck 33 radiation treatments, 3 cisplatin 8/14: G tube 8/25: Last radiation treatment | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | KaylaCole, it's different for everyone. I ate spaghetti with tomato sauce from about 2 weeks after treatment. It was the only thing I ate for almost 6 weeks.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Sep 2014 Posts: 27 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Sep 2014 Posts: 27 | I guess it is different for everyone. I am a caregiver. I tried 4 different mixes in my Nutri Bullet today. Nothing worked. He said his throat was burning so much today. I will do anything to get him to eat. I cooked his most favorite food tonight and he just can't eat it, I need any helpful hints at this point. We finished week 2 of rad/chemo. This is the first really bad day, and we have 5 more weeks to go. PEG being put in on 10/28/14.
He also had an issue with a temporary facial paralysis this morning. I did not see it, but he mentioned it this evening. Has anyone experienced this?
Any suggestions or helpful hints will be greatly appreciated.
Thank you
Caregiver BOT 3 cm 08/24/14 Pet Scan 09/24/14 localized Rad started 10/07/14 Cisplatin started 10/09/14 PEG 10/28/2014 Last Rad 11/26/14 Last Chemo 11/21/14
| | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Apr 2014 Posts: 236 | Kaylacole My mother suffers with a lot of swelling in her face and neck area also . The doctors told us it was Lymphedema. The doctor ordered Rehab in which certain facial exercises were done to help the fluid learn to route itself through other avenues . It did help some but really it takes a long time before the swelling stops. My mom swells More so in the morning but after she walks around it seems to go down some.
Sandy my mother had a cup of crushed ice with her all the time. She nibbled on that a lot for the raw burning in her throat. But my mother did have the peg so we made sure she got the calories she needed . I think you should push for the peg sooner than the 28th. That's still a week away and that's to long to go without eating.
Take Care Heid
Last edited by sweetpe1; 10-19-2014 12:58 AM.
Sweetpe Caregiver RE:My Mother Age 70 Non Smoker SCC 3/4/2014 Left rear jaw Mandiblctmy 3/25/2014 35RAD Completed on 06/03/2014 MRI 9/3/2014 25mm lobulated recurrence left mandible/floor of mouth carcinoma 9/23/14 Salvage Surgery MET(s) 9/23/14 Salvage Surgery Not Successful Chemo Recommended 1st Round of Cisplatin Chemo Started 10/20/14 Cisplatin stopped 11/20/14. Side affects to bad. Chemo started again 1/22/15 Carbo/Docetaxel Passed Away April 22,2015
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