| Joined: Sep 2013 Posts: 4 Member | OP Member Joined: Sep 2013 Posts: 4 | I had jawbone replacement surgery June 2012. I was doing OK, although my ability to chew and swallow was significantly impacted. I learned to adapt by drinking smoothies and eating soft foods. In September 2013 a small sore appeared on my jaw, on the outside, just below my left ear. My surgeon diagnosed it as Lymphodemia and put me on antibiotics and anti-inflamatories. His hope, and mine, was that it would heal. I covered the site with a large bandaid as it was draining mucous. After 9 months, the sore had gotten much bigger and the brace was actually visible. I got a second opinion from another Head and Neck surgeon in June 2014. He said the brace needed to be removed, and that doing so should correct the drainage problem. I had the brace removed in early September. Now, six weeks later, the surgical incisions have mostly healed, however, the site where the drainage began over a year ago, continues to drain a considerable amount of mucous on a daily basis. In fact, drainage is about the same as it was prior to the September surgery. My dr has me on antibiotics and anti-inflamatories, which i've been on for over a year.
Has anyone else experienced this type of drainage problem? Does it ever get better? Any insights would be appreciated. I'm starting to feel depressed that this condition may never heal. Thanks reading my post.
Terry Colborn
Diagnosed 10.95 - Stage IV neck cancer that had metastasized from my tonsil. 37 radiation treatments; radical neck dissection; chemo 01.96-04.97. Radioosteonecrosis 08.11. Jawbone replacement 06.12. Very happy to be alive!
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Has a culture ever been taken to determine what is draining? If not, i suggest bringing this up to the doctor. If you havent been referred to a wound healing specialist, ask for it. They have many different ways to help heal patients who are slower healers. After rads, healing for most of us has been severely compromised, especially on the radiation side.
Im surprised IV antibiotics (much stronger than regular ones) have not been used along with hyperbaric oxygen treatments (HBO). Your wound could be some sort of infection which needs to be addressed and fixed. Drainage can go on for weeks with some patients but this seems to me (no medical background, just an experienced patient) like its been too long. This is why I mentioned HBO as it works wonders to help speed healing in post radiated patients.
Best wishes!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | Sorry to hear about the problems. I sure hope it gets resolved as I am sure it takes its toll on you. Good luck.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | |
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