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#185856 10-12-2014 04:11 AM
Joined: Oct 2014
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Posts: 1
I stumbled upon this site and am not exactly sure what I'm expecting but here's my story : my husband thought he had a bad tooth - months later we are at home in what he feels is a hopeless situation. He was diagnosis we with a stage 3 squamous cell carcinoma of the left mandible. He had a fibula flap resection on sept 4-14 and did great .... Until it started smelling horrible - he had a terrible infection and lost the Bone graft and we our now home on iv antibiotics and go for radiation mask Monday - on tube feeds and can not have anything by mouth due to the hole the infection caused - feeling so bummed for him frown


Snicker
Msusieqfl #185857 10-12-2014 04:23 AM
Joined: May 2013
Posts: 184
Likes: 3
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Joined: May 2013
Posts: 184
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You have come to the right place. I too stumbled into this family and received encouragement and advice on the journey I had to go through. Please use this forum for questions and support. Those who comment after the welcomes will keep you on track.


Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.
Msusieqfl #185868 10-12-2014 06:45 PM
Joined: Jun 2007
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
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Welcome to OCF! Im happy you have found our site to help both you and your husband get thru the upcoming treatments.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Msusieqfl #185870 10-12-2014 07:32 PM
Joined: Oct 2013
Posts: 559
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"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Oct 2013
Posts: 559
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Hi Snicker - welcome to the family. Sorry your husband has been through so much already. Hopefully now his treatment and life can start getting back to normal.

We have a lot of caregivers here, they know how to help you get through all this too. So, lean on them when the need arises. For that matter, lean on all of us. We've been there before and came out the other end. Now many of us stick around to help those who follow.

Try to get your husband on the forum also. Reading this stuff he will think of a thousand questions to ask, he never thought of before.

Hang in there, you'll get through it.

Tony


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good

Msusieqfl #185871 10-12-2014 07:42 PM
Joined: Apr 2014
Posts: 236
Gold Member (200+ posts)
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Joined: Apr 2014
Posts: 236
Welcome to OCF

Sorry to hear of the set back.
Hopefully the I V antibiotics will get that infection cleared up. My mother developed an infection from the surgical biopsy and we didn't even know it. She didn't even run a fever. She went in for surgery a week later and the Oncologist told us she had a horrible infection in that area . She also had an IV antibiotic while she stood in the hospital. After we came home it seemed like the infections started to come back so the doctor called in some "Doxycyline Hyclate "and she seems to be doing fine now.

Good luck also with the Bone Graft.
Heidi





Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


Msusieqfl #186041 10-19-2014 07:33 AM
Joined: Sep 2013
Posts: 105
"OCF Canuck"
Senior Member (100+ posts)
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"OCF Canuck"
Senior Member (100+ posts)

Joined: Sep 2013
Posts: 105
Hi Snicker

My husband's cancer started under his left tooth cavity and was given antibiotics. He was diagnosed with stage 4 squamous cell carcinoma with metastasis to the lymph nodes.Two months later was his surgery and then radiation. His skin flap died as soon as we were dismissed to go home but his bone graft was OK. Now a year later he is a surviver.

Will your husband get a new bone graft once he healed?

Hang in there, Sophie


husband 61@diagnosis painter
6/9/13 Exophylic invasive SCC IV(ext.gingivobuccal) 3cm+ mandibular/lytic/erosion, jugular/node9mmshort-axis
17/9/13 Dx(moderately aggressive)
24/10/13 left madiblectomy, mod radical neck disct, leg flap, NGtube
2/01/14 (30 tx)rads 60gy
N2b (2nodes under jaw) (rem. in tiny nerves) (rem. 30 nodes)
Clear margin, close 2mm inner cheek
15/05/14 cellulitis
3/12/14 Chest CT Clear
27/02/15 cellulitis
8/6/15 cellulitis
10/6/15 Osteomyelitis

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