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#185767 10-08-2014 10:19 PM
Joined: Apr 2014
Posts: 236
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Joined: Apr 2014
Posts: 236
The last few days my mom has had these flu type symptoms. A lot of nausea and bad headaches . She completed the 35 Rad 6 months ago but a recurrence showed up shortly after. A second surgery was done but there were to many cancer cells so the only option is Chemo.
She visited the Oncologist this past Monday and set up the Chemo to start on the 21st of Oct. The problem is that she has been very sick with so much nausea and terrible headaches . We have to wonder could the cancer be spreading ? Her ear and face/neck hurts everyday now these flu symptoms . I wish she could've started the Chemo sooner just maybe it would help to slow this cancer down if it is spreading.
Heidi


Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


sweetpe1 #185770 10-09-2014 04:06 AM
Joined: Dec 2003
Posts: 2,606
Likes: 2
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Heidi,

What are the doctors saying? It sounds like maybe a chest X-ray is in order. There's so many things it could be. Even the flu but it's virus season, too. Please do everything you can to help get the pain under control. That will make the biggest difference in quality of life.

By flu, I am assuming upper respiratory issues. Even a constant sinus infection could cause nausea.



SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
sweetpe1 #185773 10-09-2014 06:40 AM
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
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I'm going to second what uptown said. A chest ct should be par for the course. Pump up her protein and immune system to try and prep her for chemo, it's possible her immune system is still weak and she has caught something but you need to know that for sure. Hugs and good luck.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
sweetpe1 #185785 10-09-2014 02:58 PM
Joined: Apr 2014
Posts: 236
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: Apr 2014
Posts: 236
I took her to the doctors office this morning and it seems like its a virus. A prescription for Zofran and antibiotics was given. I keep stressing to her how important it is to keep her immune system up but she can hardly eat. She has a peg so I am getting as much calories and nutrition as I can in her and she eats very small portions of food.
Thanks for your help
Heidi


Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


sweetpe1 #185798 10-09-2014 06:06 PM
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
I am so glad to hear that. Your mother is so fortunate to have you by her side. There is nothing easy in your role.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
sweetpe1 #185802 10-10-2014 12:00 AM
Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
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"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,024
I'm puzzled as to why the Dr prescribed antibiotics for a virus.
I know that this is a very difficult time Heidi. Just take it one day at a time.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
sweetpe1 #185807 10-10-2014 03:17 AM
Joined: Apr 2014
Posts: 236
Gold Member (200+ posts)
OP Offline
Gold Member (200+ posts)

Joined: Apr 2014
Posts: 236
I felt the same way about giving antibiotics if it was just a virus but the Oncologist said there could be an infection starting up also from her recent surgery . She is not running fever but the incision looks a little red in spots so I guess the antibiotics were for that. I've been trusting in these doctors and there recommendations were high. But lately i'm getting a different feeling towards them. I called MD Anderson in Texas yesterday to enquire about the Oncologist who will be treating my mom with the Chemo and I was told his credentials were high with the Anderson team . But I am getting worried and hope were making the best decision to stay in LA for her treatment.

I feel like I cant sleep anymore . I'm constantly reading and researching on different treatments and side effects that I'm sure will come.

Thank you for any advice
Heidi

Last edited by sweetpe1; 10-10-2014 03:28 AM.

Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015



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