| Joined: Mar 2014 Posts: 31 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Mar 2014 Posts: 31 | I went to see my ENT for my monthly "Watchful Vigilance" checkup and was surprised to be greeted, for the second appointment in a row, by his colleague. I was informed that my ENT was diagnosed with melanoma with some lymph node involvement and was participating in a clinical study for his treatment. My own checkup went well. No sign of my own cancer recurring; radiation side effects, including oral ulcers and pain, are slowly starting to resolve; weight is stable and my nutrition is good.
When I left and sat in my car I was engulfed with sadness. Sadness for my doctor; sadness for his young children; sadness for life itself that can be so cruel and heartless and unfair. I wept. I wept for that young man who has done so much for me. I wept for his family that will have to provide him with the support he needs for his own struggle. I wept for the maddening, frustrating, tides in the sea of life.
Then, my despair was replaced by hope. Hope for that nice, brilliant young man, and his family. Hope for all melanoma patients who might benefit from his participation in the study. Hope for life itself and its unending drive for survival and renewal. Where there is hope, despair must, and will, fade - and there is hope. There can always be hope.
2/2014 SCC T4aN2bM0 HPV+ Tonsil/BOT 3/3/2014 PEG and port 3/10/2014 Chemoradiation therapy begins 260 mg Cisplatin x3, 2.12 Gy rads x33 4/23/2014 Final Cisplatin infusion 4/25/2014 Final radiation treatment 7/17/2014 PET scan. Lymph nodes clear. Primary tumor reduced both size and SUV (borderline hypermetabolic) so it's inconclusive. 8/2/2014 PEG tube removed. 11/24/2014 Saw MO, RO, ENT, and Head & Neck Surg. over past 10 days - all agree no recurrence but enhanced surveillance will continue. | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) Joined: Nov 2009 Posts: 644 Likes: 1 | I think it's inspiring that those of us with this awful disease are imbued with so much compassion for others. I'm glad to hear that you are doing well, Liam and hope your ENT has successful treatment.
1996, ovarian cancer surgery + cisplatin and taxol. September, 2007, SCC of left lateral tongue. Excision. October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT. February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | "OCF Down Under" Gold Member (200+ posts) Joined: Mar 2014 Posts: 286 | Liam the sadness is normal, but don't get too hung up on it. You're not responsibile for all the problems in the world. Your ENT would be inspired by countless stories like yours, and be more aware than most how to mentally organise his thoughts to face the challenge. Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
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