| Joined: Sep 2014 Posts: 27 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2014 Posts: 27 | Well, being what it is... I feel relief today after a 2 hour meeting with RO. He was awesome and answered every question I had before I even asked, 2 pages of questions in my trusty note book. He is extremely optimistic about curing this nasty thing which was a good to hear. I think I will be able to sleep tonight, finally. We have a bumpy road ahead. but thanks to all of you, I knew what to ask. Keep on plugging away and I believe next year at this time it will be a memory we can forget. Thanks to all of you!
Caregiver BOT 3 cm 08/24/14 Pet Scan 09/24/14 localized Rad started 10/07/14 Cisplatin started 10/09/14 PEG 10/28/2014 Last Rad 11/26/14 Last Chemo 11/21/14
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I'm so glad you got all of your concerns addressed. So many of us just stumbled along, not sure of what to ask. I hope for the best possible outcome!
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: May 2013 Posts: 185 Likes: 3 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2013 Posts: 185 Likes: 3 | Sandy - appears you have found momentary peace with the circumstances. I have passed the one year mark and credit this group as having a major impact in my journey. Keep using them as they have already walked were you will go. There will be challenges along the way and some frustrations along the way but you are not alone. Keep us posted on progress, questions etc. Be strong and informed.
Age 55 HPV 16+ SCC, BOT 050613 Stage IV great team at OSU Tx 6 weeks of rad started June 3 8 weeks of chemo started May 28 RTOG Phase III trial Cetuximab group. Treatment completed 7/16/2013 PET Scan completed 10/08/13 Results discussed 10/11/13 NED - Free but am I Next part of the journey? 1year PET 10/24/14 NED Good reports now 10 years out. | | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | "OCF Down Under" Gold Member (200+ posts) Joined: Mar 2014 Posts: 286 | Well done Sandy. Its a bumpy road ahead for sure but between you and this RO your friend is in great hands. Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
| | | | Joined: Sep 2014 Posts: 27 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2014 Posts: 27 | I feel like I have my own special support team here. Thanks so much folks. I lost it again for a few seconds today. Just dreading the next steps. I hope you all have a fantastic weekend.
Caregiver BOT 3 cm 08/24/14 Pet Scan 09/24/14 localized Rad started 10/07/14 Cisplatin started 10/09/14 PEG 10/28/2014 Last Rad 11/26/14 Last Chemo 11/21/14
| | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | Glad things are going well for you. Having knowledge is power and comfort. I really believe the doctors appreciate those who put the effort to get educated and ask all those good questions. Subconsciously, as any human, you may care just a bit more if you know the other person is right there with you.
good luck
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Sep 2014 Posts: 27 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2014 Posts: 27 |
Caregiver BOT 3 cm 08/24/14 Pet Scan 09/24/14 localized Rad started 10/07/14 Cisplatin started 10/09/14 PEG 10/28/2014 Last Rad 11/26/14 Last Chemo 11/21/14
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