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#185456 09-24-2014 06:54 PM
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Hi, i just had my peg tube removed today. Doctor said "count backwards from 10 to 0"! I got to 7 and he yanked it out. I kinda feel more normal , i guess.

Question on shakes. I need to keep up my calories. Tonight i made a shake with, 3 scoops vanilla ice cream, chocolate boost, whole white milk, 3 spoon fulls of peanut butter, and a banana. Is this a good mix for calories? Do any of you have some recipes for my nutra bullet? Thanks and prayers to all.


Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
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Your shake sounds great!!!


Easy to Eat Food List

(All measurements are estimates)

Giant High Calorie Choc-Peanut Butter Milkshake (1200++ calories per shake)

3 or 4 cups chocolate ice cream (regular/full fat type)
2 tablespoons peanut butter (smooth type)
2 tablespoons chocolate syrup
1 or 2 cups whole milk (can substitute half and half to add even more calories)
1 scoop carnation instant breakfast
1 scoop high protein whey powder
(check with doc if this is ok)

Blend this extra long to make it very smooth and creamy so it goes down easier. If the shake is too thick, add more milk to thin it down to what works best for you.



Hang in there! Very soon you will be coming out of the tunnel.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Aug 2014
Posts: 61
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Joined: Aug 2014
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Thank you.... The peg tube was a life saver. Now i have to work on getting the calories by mouth... thanks


Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
Joined: Aug 2012
Posts: 214
Likes: 1
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Don't forget about the water. Also boost and ensure should be in play. However, I remember, being two months out, I was really sick and tired of those little bottle of corn syrup and vegetable oil. I hope your taste starts to come back soon. It makes it a lot easier to eat.


Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
Joined: Aug 2014
Posts: 61
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Thanks. Yep, i have boost and ensure, i drink with meals and as a snack. Taste is so-so. Its my salivary glands that are shot. They are all swollen, etc. Im 7 1/2 weeks out of treatment.


Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
Joined: Aug 2014
Posts: 61
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Aug 2014
Posts: 61
Just talked to my RO doc, he is pleased with my progress. He also told me i was permitted to drink a few beers, with Dinner, etc... Still not sure about it...


Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
When in doubt, do without. It's easier than wondering if you are causing a recurrence. Just my opinion.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Joined: Aug 2014
Posts: 61
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Aug 2014
Posts: 61
True. My ENT told me absolutely no tobacco. He never mentioned alcohol. Im gonna talk to all my doctors about this.


Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
Alcohol is also a risk factor, increasing with tobacco combined. We hear a lot about tobacco, but not much about alcohol.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Joined: Sep 2014
Posts: 87
Likes: 2
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Sep 2014
Posts: 87
Likes: 2
All those are good additions to your milkshakes. The chocolate/peanut butter/banana was probably my most used combination. I actually keep bananas in the freezer. Easier if you peel them before freezing. I'd snap them in half and decide if I want half, a whole or even more depending on how much milkshake I wanted that day.

Also added whey protein, frozen cherries, raspberries, blueberries, etc. coconut milk, mint, vanilla extract, ovaltine, etc.

Hmm, a chocolate stout milkshake might be pretty good. whistle (Yes, we do hear that alcohol could be bad for you. I'll leave it to others to decide if alcohol in small amounts is ok for them. I don't know how much of a contributing factor a beer or two on a weekend evening could possibly be, but I still enjoy them on occasion. If you're worried about it, don't drink them at all, but I'm guessing by your username that you might appreciate the many different styles of beer out there.)

Last edited by Vanpaddler; 09-26-2014 01:10 PM.

Dx 2014Jan29 (42 yr old otherwise fit nonsmoker)
SCC tongue stage III T3N0M0
subtotal glossectomy, partial neck dissection, RFFF, trach, NG tube 2014Feb25 16 days in hospital
RAD 25 zaps 2014May5-2014Jun9
Back to work, paddling & hiking shortly afterwards
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