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#185385 09-22-2014 12:58 PM
Joined: Sep 2014
Posts: 4
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Joined: Sep 2014
Posts: 4
I won't be visiting anymore. I had posted questions about my mother's diagnosis of jaw cancer. My brother was the one giving the information and it was not correct. She actually had parotid cancer. She went for a PET scan less than a week after her diagnosis and unfortunately the news was bad. It had metastasized and she was inoperable. At 90 years old, there was nothing she was strong enough to even attempt. The final diagnosis was given to us on 9/4 and she passed away on 9/7. My husband and I flew from MD to FL on 9/6 and we stayed with her the entire day. She was weak but her mind wasn't so she knew we were there. Most of my family was able to tell her goodbye. Thanks for your support.

Tricia K #185387 09-22-2014 02:00 PM
Joined: Jul 2009
Posts: 1,406
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Joined: Jul 2009
Posts: 1,406
Tricia, you have my condolences. I was glad to read that you were there to be with her, although I can imagine it was painful. My thoughts are with you.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
Tricia K #185388 09-22-2014 02:56 PM
Joined: Dec 2003
Posts: 2,606
Likes: 2
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Joined: Dec 2003
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Tricia, I'm so sorry to hear the news about your mother. I offer my sincere condolences to you and your family. I'm also glad you were able to be with her.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Tricia K #185391 09-22-2014 03:18 PM
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
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Tricia, Im very sorry for the loss of your mother. Im glad you were able to spend some quality time with her before she passed on. May she rest in peace, free from pain and illness.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Tricia K #185414 09-23-2014 06:17 AM
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
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I'm sorry for the loss of your mother.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Tricia K #185440 09-24-2014 03:18 AM
Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
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"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,024
Hello Tricia,
I am so sorry to hear that your Mum passed away so quickly. At 90 years young she must have lived a good life. Remember, that memories are forever.
Take care,
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!

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