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| Joined: Sep 2014 Posts: 2 Member | OP Member Joined: Sep 2014 Posts: 2 | I'm caring for my mom who had part of her jaw bone removed last year and a cheek flap surgery. She is doing pretty well and we just had her check and things look to be clear. Her issue is really swelling of her tongue and cheek. Her doctor thinks it's lymph fluid build up. Has anyone had any success with massage? Can anyone recommend a certified person who does this in Chicago? I've searched and searched and I'm not finding anyone. Thanks so much in advance for your help. -renee
Last edited by ren23; 09-15-2014 09:00 AM.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCF! After undergoing a mandibulectomy the recovery can take a full year. Its a major surgery with so much intricate details involved. Swelling can continue for months, even up to a year after this type of surgery. Ive been thru it so Im speaking from not just my experience but also what Ive witnessed other patients go thru as well. After a full year has past after the surgery your mother should be able to have debulking done or any revisions necessary. This is very common with this type of surgery to have reconstruction done later.
Our members are from all over the world. Im not sure who is in your area and if they would know of the specific specialist you are looking for. Your best chance of this would be at a CCC or a major teaching hospital. Since you are in the Chicago area there must be someone there who can help.
Best wishes! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2014 Posts: 2 Member | OP Member Joined: Sep 2014 Posts: 2 | Thank you for your reply. I've been reading these threads for over a year and I've found them so helpful.
It's been almost a year and a half and she's still having swelling. She's so miserable.
I think I might have found someone at a hospital here who does massage.
Thank you! | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Massage - lymphatic massage is terrific. - it really helps build new pathways. Hugs
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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