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#185132 09-12-2014 12:21 PM
Joined: Sep 2014
Posts: 1
shivani Offline OP
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Joined: Sep 2014
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Hi...my name is Shivani..my father age 47 has been diagnosed with tongue cancer stage t4n2m0 this march...he has already underwent chemotherapy two months back and combined chemotherapy and radiotherapy last month...now doctors say that he cannot have further radio and chemo rounds and our last shot is at surgery. ..he is currently experiencing hell lot pain..not able to eat or drink...can I have an insight over our other options in cancer care in the other countries.


My father 47 yrs old diagnosed oc t4n2m0.1 round of chemotherapy 2 months back and neoadjuvant chemo radio 1 month back....presently adviced with surgery..he s on liquid diet..in pain because of radiotherapy burns.i want to know other health care options..all over the world for this stage.
shivani #185133 09-12-2014 01:19 PM
Joined: Jul 2012
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I'm sorry for your troubles Shivani. it sounds like the cancer has returned, reminiscent or just shrunk from what sounds like induction chemo, followed by Chemoradiation? I can't answer for everyone or in every situation, but most follow NCCN Guidelines. it does seem like surgery would be the next option, and the tumor was large at T4. Chemo isn't curative by itself, and reirridation may be too early, if less than 6 months. I've heard of Brachtherapy given right after Tx, as a boost dose, after external beam radiation like IMRT, if it was part of the treatment package, otherwise another course of radiation may be too early as mentioned. Maybe another opinion would help, and getting the hospital to deal with the pain, and eating issues.

If you have any further information it would be helpful for responses, but again, none of us are doctors, but have walked in many head and neck cancer patients shoes. Is your fathers oral tongue or base of tongue, oropharyngeal, which are different, treated somewhat differently.

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






shivani #185137 09-12-2014 05:19 PM
Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
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"OCF Kiwi Down Under"
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Posts: 1,024
Hello Shivani, I'm so sorry to hear this news of your Father.
My husbands base of tongue cancer was not cured by radiation and chemo.
He then had extensive surgery to remove the tumour and reconstruct his Oropharynx. That was 2 1/2 years ago. He is well.
As Paul says , if you give us more information on where his tumour is , those who have had a similar experience can tell you their story.
There is always hope.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
shivani #185159 09-15-2014 07:34 AM
Joined: Dec 2010
Posts: 5,260
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
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Shivani. If you're in the states make sure you're at a CCC (comprehensive cancer center). It sounds to me like his cancer is in his mouth (oral tongue) not throat (base of tongue) this cancer usually best treated by surgery first then radiation and chemo,(two different causes - two different front line treatments) the idea being you get rid of the bulk of the cancer and mop up any left overs with rads and chemo. If you are in the states he needs to be seen at a CCC. If you are elsewhere in the world then he should still be seen at a top cancer center in your country. At this point the drs are right - he will need salvage surgery you want a top ENT to perform the surgery. Hopefully they are quick to get him in because this cancer can spread very quickly. Push push push. Hugs and let us know how things progress.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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