| Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Apr 2014 Posts: 236 | My mother completed her RADs in the first week of June. Recently she has been in so much pain. A scan was done last week and the Oncologist didn't want to discuss it yet because it showed not clear . He thinks because of the type of surgery she had it could be a false positive. Now a MRI is being done this coming Wednesday to get a better picture of whats going on. Her pain is in all the same spots. Her ear ,tongue ,and rear jaw bone that was left in after surgery. My question is Could the cancer be relapsing so soon. Its only been 3 months . Also her neck is so swollen in the morning . The Oncologist said it is from the lymp node removal . About how long until this swellen clears up
Sweetpe Caregiver RE:My Mother Age 70 Non Smoker SCC 3/4/2014 Left rear jaw Mandiblctmy 3/25/2014 35RAD Completed on 06/03/2014 MRI 9/3/2014 25mm lobulated recurrence left mandible/floor of mouth carcinoma 9/23/14 Salvage Surgery MET(s) 9/23/14 Salvage Surgery Not Successful Chemo Recommended 1st Round of Cisplatin Chemo Started 10/20/14 Cisplatin stopped 11/20/14. Side affects to bad. Chemo started again 1/22/15 Carbo/Docetaxel Passed Away April 22,2015
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | Unfortunately, cancer can recurr at anytime, although not common in several weeks, or can be reminiscent, but the symptoms may just as well be treatment related, and as the doctor said, the morning swelling can be from the lymph fluid pooling. I sleep on an incline, which I find helpful. I'm almost 4 years out from radiation, 3 years from my first neck dissection, and still have swelling, more so on the most radiated right side, and under chin. Everyone is different, had different Tx, and it's not easily understood why some have lympdemia while others don't, but it's not uncommon. Some do PT, have manual lymphatic drainage massage, which may help prevent fibrosis, but check with your doctors first. I had so many recurrences I wasn't letting anyone play around with my neck, except my ENT.
Good luck with the MRI. The majority of post treatment scans at three months are clear of cancer.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | Hi, agree with Paul. At three months after radiation it is very rare for recurrence to be occurring in the same spot. Sounds a lot like side effects and I bet the MRI will show this is all scarred or swollen tissue. Hang in there.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Oct 2012 Posts: 41 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Oct 2012 Posts: 41 | my husband's cancer came back 4 months after a mandibulectomy but not in the exact same spot...Hoping for the best for you Mom.
Caregiver to husband 53 SCC stage 3 soft palate 2011 Rad, recurrence tongue stage 4 2012 induction chemo, partial glossectomy surgery, cancer back left rad neck dissection 2013, more chemo, allergic to erbitux, cancer back 2014 floor of mouth and jaw, mandibulectomy scheduled 3/5/2014
| | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | "OCF Down Under" Gold Member (200+ posts) Joined: Mar 2014 Posts: 286 | 3 months post rads is a worrying time. You don't have the clear results from the PET, you are still suffering the same sore throat you had before treatment, it doesn't feel like anything has changed. With the surgery on the lymph nodes the repair process is even slower. But all that is completely normal and the phase does pass. A false positive on the first PET is not uncommon with all the inflammation going on.
Recovery is not linear, and there are setbacks along the way. New pain like any change in symptoms should be reported to and managed by the doctors, but don't be surprised or unduly worried when there are bumps in the road. Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
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