Previous Thread
Next Thread
Print Thread
Joined: Apr 2014
Posts: 236
Gold Member (200+ posts)
OP Offline
Gold Member (200+ posts)

Joined: Apr 2014
Posts: 236
Its been three months since My mothers last RAD treatment. She had her first scan two weeks ago and it showed positive so the ENT Oncologist ordered a MRI on 9/3/14. We received the results yesterday on 9/5/14 and its also shows positive for regrowth. However the ENT Oncologist doesn't want to believe that it is regrowth . He said he is going o get together with the RAD Oncoligist to see what he thinks . in the mean time my mother is in a lot of pain . The ENT oncologist seems to think inflamation could be causing a false positive. What do you think about this anybody


Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
There are many of us who have had the false positive result from a PET. Its fairly common, it happened to me too. If you use the search feature and put in the key words false positive you will find this discussed many times by many members.

Yes, inflammation can create a false positive result. With having a major surgery such as the mandibulectomy and finishing rads only in June, its very possible there is considerable swelling still there. This will cause the scan to light up like a Christmas Tree.

Wishing your mother all the very best with this! Hopefully its exactly what your doc explained, just a false positive and nothing else. Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Apr 2014
Posts: 236
Gold Member (200+ posts)
OP Offline
Gold Member (200+ posts)

Joined: Apr 2014
Posts: 236
Thanks for the help Christine.
What has us really concerned with the positive scans also is that she is in so much pain . As I type this it is 1:30 am and we are debating on weather or not to go to the emergency room. Her ear is really hurting the most. Today was a really bad day.


Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
If there is ever that much pain to question a trip to the ER then you should go. Always better to get checked out and help make sure everything is ok. Maybe some pain meds that will help could be gotten.

Pain will make healing more difficult. It does not help patients at all other than to alert them to a possible problem. Even scar tissue can cause pain. Hopefully it will be under control soon.

Good luck!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Apr 2014
Posts: 236
Gold Member (200+ posts)
OP Offline
Gold Member (200+ posts)

Joined: Apr 2014
Posts: 236
Well today on Monday 9/8/14 we met with the RO and ENT Oncologist to discuss the Positive CT Scan and MRI . The MRI Indications were Carcinoma the floor the mouth, Partial left mandible resection .
The CT Scan indicates 25mm lobulated recurrence left mandible/floor of mouth Carcinoma.
A biopsy will be taken this week to be 100% sure . My mother is so upset that a recurrence has happened so fast.


Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Im sure she is terribly upset by this. Poor thing, after everything she already has been thru! Im so very sorry!!!! Ive been thru recurrences my self and know how scary they can be.

The likely course of action would be another mandiculectomy. Ive actually had 2 of them myself. From what you said this one would take more tissue to get the floor of her mouth's cancer.

Hoping for the best! Good luck with the biopsies.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5