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#184671 08-27-2014 08:07 PM
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Alpaca Offline OP
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Three months out of treatment, had three fillings two weeks ago and last night developed severe toothache with one lower molar on my 'good" side very painful to touch. After waiting a couple of hours at the oral health unit at the hospital I was told that the tooth concerned has some decay around the filling, is not root filled and is on its way out. I saw a very young dentist who will give my case to the specialist dentist to figure out and they'll get back to me. She just filed it down to prevent occlusion and gave me some antibiotics. I've always had bad teeth but ... is it normal for radiation to cause decay so FAST? I am eating (or drinking) sweet things but I use a Waterpik and strong fluoride toothpaste.

I'm not tooo distressed about this - I've been through a lot worse - but it's scary how rapid the decay is ... on my good side.


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
Alpaca #184673 08-27-2014 11:39 PM
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Same thing happened to Kris's teeth. They just fell apart. Broke off at the gum line. It took 18 months before he got any treatment. He has had them all root canalled now by the hospital dentist. That's not the end though, one of them has again broken. He uses a high fluoride toothpaste that we get from a specialist dentist practice in town. He has a water pik.
I don't know. His teeth were always terrible and crumbly. He was at the dentist at least every 4 months for running repairs before cancer . Maybe some are more prone to this decay come what may after radiation .
Hope the Greenlane clinic can help.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Alpaca #184674 08-27-2014 11:55 PM
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I had three teeth out on one side before rads, then I needed to go back to the dentist to refill the "good" side because they had spread apart and were catching food.

As you say its not something to be too distressed about, we've been through much worse.


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.
Alpaca #184677 08-28-2014 12:46 AM
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Thanks, fellow Antipodeans. I'm hiding on this site right now so that I miss the first election debate on TV. I care so much that I can't bear to watch it. After this I'll go on Twitter to find out who "won" and if it is okay I'll watch it On Demand. I'm glad there's something I care about as much as my teeth!!


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
Alpaca #184679 08-28-2014 04:00 AM
Joined: Dec 2003
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I hope the debate helps! The teeth are a constant battle. I had one break off at the gums at 5 years, then I had 8 ground down with crowns out on them.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Uptown #184688 08-28-2014 01:27 PM
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Alpaca Offline OP
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It's nice to communicate with people who have the same problems but I think I've broken the speed record here: three months out and teeth are falling like dominoes:)


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
Alpaca #184689 08-28-2014 02:06 PM
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Same thing happened to me. My teeth were so loose I was afraid they would just fall out. I managed to hang onto them for over a year before I gave in and had them pulled. Of course that meant 20 HBO dives prior to and 10 after the extractions. I was not able to get dentures made after undergoing my third round of OC which removed half of my lower jaw. Its impossible to wear a denture if you only have half of your lower jaw for it to sit on. No matter what I look like now, inside Im still the same upbeat and optimistic person. I just know you will fare much better than I did.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Alpaca #184690 08-28-2014 05:08 PM
Joined: Nov 2009
Posts: 644
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Alpaca Offline OP
"OCF Down Under, Kiwi"
"Above & Beyond" Member (500+ posts)
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You are a gorgeous person Christine.


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
Alpaca #184691 08-28-2014 06:09 PM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

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And you are just way too kind! Thank you smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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